Soma Sengupta, Chair and Neurologist-in-Chief at Tufts Medicine, shared a post by ChadTough Defeat DIPG Foundation on LinkedIn, adding:
“Dr. Dunn, thank you for what you do and for sharing your heartbreaking journey. May is never just another month. I am looking forward to being on the panel with you at the Society for Neuro-Oncology National Meeting, 2026.
Having lost a childhood friend to diffuse intrinsic pontine glioma, and having cared for patients like Emily – whose legacy lives on through the Emily’s Light Foundation – I am constantly reminded that this is a time to pause.
- To remember the lives cut far too short.
- To honor the courage of children and families who face the unimaginable.
- To reflect on how far we have come – and how far we still must go.
In the clinic, in research, and in advocacy, these stories stay with us. They shape the questions we ask, the urgency we carry, and the hope we hold onto.
May is a moment of reflection – but also a call to continue.
Researchers like yourself, Michelle Monje, Pratiti (Mimi) Bandopadhayay, are also to be thanked for your dedication to these aggressive pediatric brain tumors.”
Quoting ChadTough Defeat DIPG Foundation‘s post:
“Drs. Phoebe and Matt Dun found themselves in a tragic yet unique situation when their two-year-old daughter, Josephine, was diagnosed with DIPG.
Phoebe, a general practitioner, and Matt, a biomedical scientist who specializes in cancer, tried to understand everything they could about DIPG. They wanted to make a real difference for all patients and families impacted by this terrible disease. They created the RUN DIPG in order to raise awareness of this disease and to generate funding to support the advancement of DIPG/DMG research.
Josephine passed away 22 months after her diagnosis, making her forever four. We remember her today on her birthday.
We are proud to have RUN DIPG as a Research Partner.
Learn more about Josie and RUN DIPG here.
For more information on our partnership programs, visit.”
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