rare diseases
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July, 2024
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« Jun
rare diseases
Jun 30, 2024, 14:19 |
Blog
MSN Laboratories - Our new division, Radium - Rare Diseases And Unmet Needs
MSN Laboratories shared on LinkedIn: "We are excited to launch a New Division!. Patients with rare…
Jun 15, 2024, 06:58 |
Blog
Begoña Nafría Escalera: Today, I'm happy for the children who live with rare diseases
Begoña Nafría Escalera, Patient Engagement in Research Coordinator at Hospital Sant Joan de Déu, shared…
May 24, 2024, 14:06 |
Blog
Naveen Pemmaraju: VEXAS syndrome
Naveen Pemmaraju shared a post on X: “VEXAS syndrome (vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic): clinical…
May 3, 2024, 00:45 |
Insight
A multinational effort created new guidelines for Diamond Blackfan anemia syndrome treatment - St. Jude Children’s Research Hospital
St. Jude Children’s Research Hospital shared a post on LinkedIn: “A multinational effort with St. Jude…
Mar 28, 2024, 02:07 |
Blog
Alexandra Heumber Perry: A pleasure to participate on behalf of Rare Diseases International in the panel Health for All at ChangeNOW
Alexandra Heumber Perry, CEO of Rare Diseases International, recently posted on LinkedIn: "A pleasure to…
Mar 13, 2024, 22:47 |
Blog
We invite you to join our mission to build international dataset and raise awareness about these rare diseases - Rare Embryonal Tumors of the CNS International Registry
Rare Embryonal Tumors of the CNS International Registry posted on LinkedIn: "It's been a year…
Mar 13, 2024, 15:19 |
Blog
Sylvester Cancer, NANETS Partner to Present Regional Conference on Multidisciplinary Management of Neuroendocrine Tumors
Sylvester Comprehensive Cancer Center at the University of Miami Miller School of Medicine and the…
Dec 4, 2023, 11:05 |
Blog
Svetlana Nikic: Exciting update in regard to genomic testing in cancer and rare disease patients in Germany
Svetlana Nikic, Founder of Precision Oncology Consulting, posted on LinkedIn: "Exciting update in regard to…
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The largest philanthropic partnership in The V Foundation’s history - Dolphins Cancer Challenge
Glecirasib: A Promising Novel KRAS G12C Inhibitor in Clinical Development
How the Médecins Sans Frontières Journal Inspired a Lifetime of Humanitarian Service: Paul Spiegel
OncoDaily Party and Yvonne Award Photos - Part 1
Michael Douglas: The Untold Story of His Battle Against Cancer
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