Thiago Favano, Senior Director at MiNK Therapeutics, shared on LinkedIn:
“I’m delighted to have contributed as scientific reviewer of the 3rd edition of the Compêndio de Doenças Raras (Compendium of Rare Diseases) by Instituto Vidas Raras, launched at the 37th Brazilian Congress of Medical Genetics and Genomics in São Luís.
It was an honor to work alongside Rayana Maia, scientific coordinator, with editorial coordination by Rosely Cizotti and the support of the entire Institute team.
The book brings together 91 chapters written by Brazilian specialists and is freely available to healthcare professionals, researchers, and students.
Working with patient associations is always a privilege.
Their work is essential: they turn lived experience into knowledge, awareness, and better care for patients and families.
This book is also part of the legacy of Regina Próspero, who devoted her life to the rare disease cause.
Seeing this work completed is a true joy.”
You can also read: FDA Launches Framework to Accelerate Individualized Therapies for Ultra-Rare Diseases 2026
