Kelly McCabe, Co-Founder and CEO at Perci Health, shared a post on LinkedIn:
“If we know cancer is becoming a long-term condition… why is redesign so difficult?
In one word: Fragmentation.
Fragmented commissioning and reimbursement
We still largely pay for activity, not outcomes. Hours of care. Individual appointments. Point solutions.
But chronic condition management requires continuous, value-based, whole-pathway thinking. That demands payors to think differently and reimbursement models to evolve. There is still a gap between value-based ambition and fee-for-service reality.
Fragmented data
People living with cancer move between tertiary oncology, secondary care, primary care and other community services. There is rarely a seamless data view across those settings.
Without baseline longitudinal data:
- We can’t clearly see total cost of care
- We can’t identify value erosion
Lack of shared data equals lack of economic clarity around the need for good quality, longitudinal survivorship care which stalls innovation. This is why the vast majority of this care is still delivered by the charity sector and not well-funded in core treatment pathways despite mounting evidence of its clinical benefits for patients.
Fragmented care coordination
Multimorbidity is becoming the norm, not the exception. Yet we are not systematically managing it. GPs refer to different subspecialties, those specialists operate in silos and people living with cancer are asked to repeat their story again and again.
No one is looking at the whole person.
Until reimbursement, data infrastructure and multidisciplinary coordination align, the management of cancer as a long-term condition will continue to feel fragmented rather than truly coordinated, and this puts our patients at risk. The ambition is there. The operating system is not…. yet.”
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