Janice Cowden: Accurate counting and research funding for metastatic breast cancer
Janice Cowden, Former nurse, Cancer patient and Advocate, shared a post on X by Ann McBrien, Former NHS accountant, about an article by Ann and colleagues published in JAMA Network Open:
“Phenomenal work, Ann McBrien! Well done.
This is desperately needed in the US in order to accurately count the number of patients living with metastatic breast cancer, fully understand the impact of this disease, and drive research funding!”
Quoting Ann McBrien’s post:
“This is hugely significant.
Lobbied for 2 metastatic breast cancer patients, funded by Cancer Focus Northern Ireland and work carried out by a dedicated team NI Cancer Registry.
Proud to be a co-author of this research and Julie isn’t alive to see NI amongst 1st in the world to count MBC patients!”
“Estimated Incidence and Prevalence of Metastatic Breast Cancer in Northern Ireland, 2009 to 2020”
Authors: Sinead Hawkins, Amisha Ashok, Jackie Kelly, Gerard Savage, Deirdre Fitzpatrick, Helen Mitchell, Ann McBrien, Damien Bennett.
More posts featuring Janice Cowden.
Janice Cowden is a former nurse, cancer patient and advocate. She was diagnosed with stage I triple-negative early-stage breast cancer in 2011; later, Janice was diagnosed with metastatic disease in 2016. She became a Living Beyond Breast Cancer Hear My Voice (HMV) Advocate in 2017 and continues to serve as a Helpline Volunteer.
Janice works with several patient-founded and -led organizations including PCDI, GRASP, and Project Life MBC. As a trained peer support volunteer, she is founder of an international online peer support group for patients newly diagnosed with MBC.
She serves on the Board of Directors for METAvivor Research and Support, Inc., and is an Advisory Board member for Project Life MBC. In 2022, she attended ASCO as a patient advocate scholarship recipient. In October 2022, she was invited to serve as a lead patient advocate, representing PCDI, on a research study with ASCO.
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