Alejandra Mendez, Vice President at Childhood Cancer International, shared on LinkedIn:
“I loved this paper by Jennifer Currin-McCulloch , Yixuan Wang and Cheng Jin from Colorado State University, which I read yesterday. It provides strong support for a fundamental principle of meaningful PWLE (people with lived experience) engagement that is sometimes overlooked: children themselves have lived-experience expertise.
Children should be meaningfully included in conversations that affect their lives – always in an age-appropriate way – and in the design of the services intended to support them.
It is not enough to speak about children or make decisions on their behalf. We must also create safe spaces to listen to them, understand their perspectives, and ensure their experiences inform decision-making.
Family-centered care should not only ask families what they need; it should create systems in which children and families can influence what care looks like.
I highly recommend reading this paper!”
Title: Not Too Young to Understand: Meaning Making From the Perspectives of School-Aged Children With Cancer-A Scoping Review
Authors: Yixuan Wang, Cheng Jin, Jennifer Currin-McCulloch, David MacPhee, Abby R. Rosenberg, Yijia Yang, Zhenrong Su, Peichen Liu, Jiameng Wang, Sydney Pryor.
Read the full article.
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