The Max Foundation shared on LinkedIn:
“A mother of 4 ranging in age from 2 to 23, Jun Maya lives in a town 2 hours away from Kathmandu, Nepal.
For more than a decade, Jun Maya and her family navigated the challenges of living with paroxysmal nocturnal hemoglobinuria (PNH), a rare blood disorder where the immune system attacks red blood cells, causing anemia, fatigue, and risk of blood clots.
As a result, she faced frequent blood transfusions, long journeys for specialized care, and treatment costs that led her family to sell part of their ancestral land.
In May 2026, Jun Maya gained access to treatment through our collaboration with her care team at Patan Hospital and Novartis. Two months later, her family reported fewer hospital visits and no recent blood transfusions. This marked a meaningful change in their daily lives.
This World PNH Day, we recognize Jun Maya and everyone navigating life with the condition. Her story reminds us why access to treatment and support matters for patients and the families beside them.”
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