In this episode of Experts by Experience by OncoDaily, Carmen Monge speaks with Rohini Singh Sisodia, a cholangiocarcinoma survivor, patient advocate, and integrative health and wellness coach based in Brussels, Belgium. Drawing on her lived experience of cancer and professional background in law, coaching, yoga, and holistic wellbeing, Rohini shares how her journey shaped her commitment to empowering people affected by cancer and bringing patient voices into research, policy, and care.
The conversation explores the challenges of navigating a rare cancer diagnosis, grief, pregnancy loss, migration, language barriers, and life after treatment. Rohini highlights often-overlooked aspects of survivorship, including mental and emotional wellbeing, fertility, relationships, identity, and the difference between being “cured” and being truly healed.
As the founder of RSS Heals, Rohini discusses her work supporting people through chronic illness, recovery, and life beyond diagnosis through coaching, yoga, holistic workshops, and community-building. She also shares her vision for whole-person, multidisciplinary cancer care that addresses the physical, mental, emotional, social, and spiritual dimensions of wellbeing.
The episode closes with reflections on resilience, purpose, hope, and the power of lived experience to transform cancer care.