Patient Advocacy

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February, 2025
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Patient Advocacy
Feb 11, 2025, 17:37 | Blog
Darius Benimana: Recommendations from PALC25
Darius Benimana, Medical Student at University of Rwanda, shared a post on LinkedIn: "Recommendations from…
Jan 25, 2025, 12:41 | Cancer Types,Societies
Kim Newcomer: I love seeing patient advocates at GI25
Kim Newcomer, Director of Volunteers at Colorectal Cancer Alliance, shared a post on X: "I…
Jan 19, 2025, 15:04 | Blog
Pam Mangat-Dhaliwal: How ASCO is putting its commitment to patient advocacy into action
Pam Mangat-Dhaliwal, Division Director of Clinical Research and Analytics at ASCO, shared a post on…
Jan 7, 2025, 16:08 | Blog
Amy C. Moore: Great opportunity for anyone interested in learning more about patient advocacy
Amy C. Moore, Vice President of Global Engagement and Patient Partnerships at LUNGevity Foundation, shared…
Dec 18, 2024, 18:34 | Blog
Razelle Kurzrock: Pleasure to give talk for Cancer Precision Medicine Commons
Razelle Kurzrock, Associate Director of Clinical Research for the Medical College of Wisconsin Cancer Center,…
Dec 17, 2024, 23:14 | Blog
Arif Kamal: Caregivers are central to a cancer patient’s journey
Arif Kamal, Chief Patient Officer for the American Cancer Society, posted the following on LinkedIn: “Finances…
Dec 17, 2024, 21:16 | Blog
Donjeta Zeqa: Honored to have represented Patient Organizations at PharmaHorizon 2025
Donjeta Zeqa, President, Europa Donna Albania, posted the following on LinkedIn: “Honored to have represented Patient…
Dec 13, 2024, 05:30 | Blog
AbbVie Announces Emotional Impact Report on Mental Health of Underrepresented CLL Cancer Patients
New insights show Black, Hispanic, and Asian patients have more negative emotional experiences and outlooks…
Dec 7, 2024, 16:57 | Opinion
Estela Rodriguez: Honoring heroes at FLASCO’s Living with Lung Cancer event
Estela Rodriguez, Associate Director of Community Outreach and Co-Lead of Thoracic Site Disease Group of…
Dec 7, 2024, 15:59 | Blog
Estela Rodriguez: Inspired by lung cancer patient advocates in Florida
Estela Rodriguez, Associate Director of Community Outreach and Co-Lead of Thoracic Site Disease Group of…
Dec 7, 2024, 15:17 | Blog
Julia Maués: Join GRASP at SABCS24 to connect advocates and researchers
Julia Maués, Co-Founder of GRASP, posted the following on X: “Attending SABCS24? Join the GRASP reception, one…
Dec 7, 2024, 15:16 | Blog
Learn how to prevent six types of cancer - European Cancer Organisation
European Cancer Organisation posted the following on LinkedIn: “Want to protect your sons and daughters…
Dec 7, 2024, 00:47 | Blog
Penilla Gunther: Put 17-18 March 2025 in your calendar!
Penilla Gunther, Member of the EU Cancer Mission and Former Member of Swedish Parliament, shared a…
Dec 5, 2024, 23:01 | Blog
Kwanele Asante: Consistent remuneration empowers African patient partners
Kwanele Asante, Award Winning Health & Human Rights Activist, posted the following on LinkedIn: “The…
Dec 5, 2024, 22:59 | Blog
Lisa A. Lacasse: Fight cancer and make time
Lisa A. Lacasse, President of the American Cancer Society Cancer Action Network (ACS CAN), shared a…
Dec 5, 2024, 22:53 | Blog
Spreading joy through giving this Tuesday - St. Elizabeth Healthcare
St. Elizabeth Healthcare posted the following on LinkedIn: “Spreading joy through the power of giving…
Dec 4, 2024, 21:31 | Blog
Join us in supporting cancer researchers this Giving Tuesday - ASCO
ASCO - American Society of Clinical Oncology reposted a post by Conquer Cancer, the ASCO…
Dec 4, 2024, 21:23 | Blog
Cristina Notermann: Every second matters on Giving Tuesday
Cristina Notermann, Managing Director, Strategic Insights at American Cancer Society, posted the following on LinkedIn: “Every…
Dec 4, 2024, 09:54 | Positive
100 Influential Women in Oncology: Key Opinion Leaders to follow on Social Media in 2024
Starting on August 26, in honor of Women’s Equality Day in the United States, which…
Dec 2, 2024, 09:46 | Positive
Top 100 Xfluencers in Lung Cancer: Key Opinion Leaders to Follow on X (Twitter) in 2024
As November came to a close, it's an ideal time to reflect on Lung Cancer…
Nov 28, 2024, 23:30 | Blog
Petra Ibum Adjah: The hardest lesson I’ve learned working in the oncology space
Petra Ibum Adjah, Communications Manager for Pink Africa Foundation (PAF) and Non-Clinical Oncology Patient Navigator,…
Nov 28, 2024, 18:40 | Blog
Eugene Manley: Insights from the STEMM & Cancer Health Equity Summit at PCOM Georgia
The STEMM & Cancer Health Equity Summit, held at PCOM Georgia, brought together experts, advocates,…
Nov 21, 2024, 15:52 | Insight
Anirban Maitra: TrialGPT in the most important benefits I see
Anirban Maitra, Professor of Pathology and Translational Molecular Pathology at UT MD Anderson Cancer Center,…
Nov 10, 2024, 16:55 | Blog
A Teen’s Story of Hope and Support from The Leukemia and Lymphoma Society
The Leukemia & Lymphoma Society posted the following on X: “'Fast forward two years, I…
Nov 3, 2024, 16:25 | Blog
Raising awareness on biomarker information gaps for metastatic breast cancer patients - ABC Global Alliance
ABC Global Alliance shared the following on LinkedIn: “Did you know 56% of patients didn’t…
Nov 2, 2024, 03:30 | Blog
Launch of the Africa Breast Cancer Council - Roche Africa
Roche Africa shared the following on LinkedIn: “Socio-cultural barriers and widespread stigma are hindering early…
Nov 2, 2024, 03:16 | Blog
Françoise Meunier: Protecting survivors from financial discrimination
Françoise Meunier shared on LinkedIn: “The fight against financial discrimination against cancer survivors is far from over.…
Oct 31, 2024, 17:16 | Blog
Monica Steigerwald: Gilead Sciences announced its amazing allocation of $3.15 million to 22 organizations
Janice Cowden, Former nurse, cancer patient and advocate, shared a post by Monica Steigerwald, Vice President…
Oct 24, 2024, 14:54 | Blog
Olalekan Ajayi: Today was a great day at Highlands Oncology Group
Olalekan Ajayi, COO of Highlands Oncology Group, shared on LinkedIn: “Today was a great day at…
Oct 23, 2024, 13:04 | Blog
Addressing challenges for MBC patients awaiting benefits - Infinite Strength
Infinite Strength Inc. shared the following post on LinkedIn: “With an average life expectancy of…
Oct 18, 2024, 16:46 | Insight
Vivek Tomar: Honoured to represent Indian Lung Cancer patients voices at ACLC24
Vivek Tomar, Executive Director of Head of Global Regulatory Affairs and Medical Writing India and…
Oct 18, 2024, 15:36 | Blog
Oncoinfluencers to Follow on Social Media: Dr. Riya Patel
We are excited to introduce Dr. Riya Patel, a dedicated advocate in hematology and oncology,…
Oct 17, 2024, 14:08 | Opinion
Oncoinfluencers to Follow on Social Media: Dr. Saad Nasir
We are excited to introduce Dr. Saad Nasir, a dedicated advocate in oncology and a…
Oct 8, 2024, 10:58 | Blog
Angela Mastronuzzi will begin her term as president of AIEOP on December 1st
Angela Mastronuzzi shared the following on LinkedIn: “The XLIX AIEOP National Congress has just concluded…
Oct 4, 2024, 16:12 | Blog,Opinion
AIEOP - Biggest event of the year is here
AIEOP (Associazione Italiana Ematologia Oncologia Pediatrica) shared a post on LinkedIn: '' AIEOP’s biggest event…
Oct 4, 2024, 13:55 | Blog
Oncoinfluencers to Follow on Social Media: Dr. Cathy Eng
We are excited to introduce Dr. Cathy Eng, a leading expert in gastrointestinal oncology and…
Oct 3, 2024, 14:50 | Blog
Oncoinfluencers to Follow on Social Media: Dr. Tian Zhang
We are excited to introduce Dr. Tian Zhang, a leading expert in genitourinary oncology and…
Oct 1, 2024, 15:27 | Blog
Oncoinfluencers to Follow on Social Media: Dr. Pamela Kunz
We are excited to introduce Dr. Pamela Kunz, a leading advocate for cancer care and…
Sep 30, 2024, 16:12 | Blog
Triparna Sen: Honored to participate in the Lung Cancer America patient advocacy workshop
Triparna Sen, Associate Professor, Icahn School of Medicine at Mount Sinai, shared a post on X:…
Sep 29, 2024, 06:08 | Positive
Top 100 Xfluencers in Pediatric Hematology/Oncology: Key Opinion Leaders to follow on X (Twitter) in 2024
As September, Childhood Cancer Awareness Month winds down, we reflect on it by recognizing and…
Sep 23, 2024, 10:00 | Blog
Honoring Daniel Caplan’s Memory with Research Funding for DIPG - ICR
The Institute of Cancer Research (ICR) posted the following on LinkedIn: “‘We want to keep…
Sep 22, 2024, 18:11 | Insight
Radioligand Therapy Offers Hope to Lung Cancer Patients - Oncogene Cancer Research
Oncogene Cancer Research posted the following on LinkedIn: “Radioligand Therapy is offering hope to cancer…
Sep 22, 2024, 16:04 | Blog
CML is not a death sentence - The Max Foundation
The Max Foundation shared on LinkedIn: "Meet Serah, a nurse practitioner from Nairobi, Kenya. In 2021…
Sep 19, 2024, 13:44 | Blog
OncoInfluencers to Follow on Social Media: Dr. Maryam Lustberg
We are excited to spotlight Dr. Maryam Lustberg as a leading figure in breast cancer…
Sep 18, 2024, 10:07 | Blog
Daniel Sumarriva: Discussing personalized treatments and digital oncology at ESMO24
Daniel Sumarriva, Senior Director of Molecular Science Liaisons at Caris Life Sciences, shared a post…
Sep 18, 2024, 06:17 | Blog
Arun Krishna: Breaking down barriers to equitable care in lung cancer
Arun Krishna, Vice President, Franchise Head, US Lung Cancer Business at AstraZeneca, posted the following on…
Sep 17, 2024, 16:17 | Blog
Paolo Tarantino: Forever grateful to mentor and friend Joey Curigliano
Paolo Tarantino posted the following on X: “Here’s to a mentor, a friend, a fierce…
Sep 10, 2024, 10:28 | Blog
Matthew Herper: Facing cancer is hard -- even if you're someone who would change the way we treat cancer
Matthew Herper, Senior Writer, Medicine, and Editorial Director, Events at STAT, made the following post…
Sep 2, 2024, 16:56 | Blog
Lisa A. Lacasse: Affordable health coverage is one of the top issues regardless of party affiliation
Lisa A. Lacasse shared a post on LinkedIn: "New polling from American Cancer Society Cancer…
Aug 28, 2024, 13:37 | Blog
OncoInfluencers to Follow on Social Media: Dr. Gemma Peters
We are excited to spotlight Dr. Gemma Peters as another influential figure in the oncology…
Aug 27, 2024, 21:41 | Blog
Ashish M. Kamat: IBCG24 has officially concluded
Ashish M. Kamat, Endowed Professor of Urologic Oncology at MD Anderson Cancer Centre, shared on…
Aug 26, 2024, 21:25 | Blog
World Patient Safety Day Webinar on Diagnosis
World Patients Alliance made the following post on X: "World Patient Safety Day Webinar on Diagnosis…
Aug 26, 2024, 21:22 | Blog
Vincent Rajkumar: Why are prescription drug prices far higher in the US than other developed countries
Vincent Rajkumar shared a post on X: “Why are prescription drug prices are far higher…
Jul 29, 2024, 17:50 | Blog
Sally Wolf: Patient advocacy almost always begins with oneself
Sally Wolf, CEO and Founder of LightWorks, shared on LinkedIn: ''I cried twice at my…
Jul 28, 2024, 15:35 | Insight
Rebecca Shatsky: Difficult to get grants to fund the research for leptomeningeal carcinomatosis
Rebecca Shatsky shared on X: "Leptomeningeal carcinomatosis used to be an immediate death center in…
Jul 25, 2024, 21:45 | Blog
Shine a Light on Sarcoma: Awareness, Prevention, and Hope - SHRO
Sbarro Health Research Organization (SHRO) shared on LinkedIn: "Sarcoma Awareness Month Shine a Light on…
Jul 16, 2024, 23:38 | Blog
For Caleb Egwuenu best patient advocacy is about adapting to the local needs
Oncogene Cancer Research shared a post on LinkedIn: ''How can we use the best patient…
Jul 8, 2024, 08:33 | Blog
ALK Summit 24 Agenda is out! - ALK Positive
ALK Positive shared the following post on X: "Our jam-packed ALK Summit 24 Agenda is…
Jul 7, 2024, 17:51 | Blog
Stephen V. Liu: How do we encourage colleagues and patients to wait for biomarker results?
Stephen V. Liu shared on X: “Faced with an urgency to start therapy for newly…
Jul 7, 2024, 17:19 | Blog
Vicki Durston: Highlighting the Power of Patient Advocacy
Vicki Durston, President of the General Assembly at ABC Global Alliance, shared a post on LinkedIn: …
Jul 1, 2024, 02:25 | Blog
Insights from ESMOGI24 by Cathy Eng
ESMO GI 2024 took place from June 26 to 29 in Munich, Germany, featuring both…
Jun 28, 2024, 11:22 | Blog
Richard Vines: An update on the work of Rare Cancers Australia in Asia
Richard Vines, Chair - Rare Cancers Australia, made the following post on LinkedIn:     .…
Jun 27, 2024, 02:23 | Blog
Sarah Adly: Our Article on 'Optimizing Outcomes in Advanced Renal Cell Carcinoma'
Sarah Adly, NCODA Fellow in Oncology, made the following post on LinkedIn:      .…
Jun 16, 2024, 10:46 | Blog
Mallinckrodt is partnering with admedicum
Lung Cancer Europe shared on X: “Mallinckrodt, a patient-focused pharmaceutical company, is partnering with admedicum, a…
Jun 15, 2024, 07:08 | Blog
Caitlin Delaney: Looking Forward to Speaking at the Cancer Nurses Society of Australia Congress
Caitlin Delaney, Chair of the National Patient Advisory Committee and Patient-Partnered Research at VCCC Alliance, shared…
Jun 15, 2024, 06:48 | Blog
By activating grassroots volunteers nationwide ACS CAN fights cancer in city halls, statehouses, and Congress
Lisa A. Lacasse, President at American Cancer Society Cancer Action Network, shared a post by American…
Jun 10, 2024, 06:58 | Blog
Yasmine Hassan: Just wrapped up an amazing ASCO conference, now gearing up for the upcoming EHA
Yasmine Hassan, Global Patient Affairs Director at AstraZeneca, made the following post on LinkedIn: "Just…
Jun 10, 2024, 01:51 | Blog
Zainab Shinkafi-Bagudu: I was pleased to offer a glimpse into our work as advocates in Nigeria at ASCO24
Zainab Shinkafi-Bagudu shared a post by ecancer X, adding the following: “Thank you ecancer. Amidst all…
May 31, 2024, 03:27 | Blog
CML Horizons was an impressive gathering of global leaders exploring the latest in Chronic Myeloid Leukemia advocacy and care! - The Max Foundation
The Max Foundation shared on LinkedIn: “Last week's CML Horizons was an impressive gathering of global…
May 29, 2024, 06:43 | Blog
Andrew Mosley: We were at Parliament House on World Blood Cancer Day to highlight the challenges faced by blood cancer patients
Andrew Mosley, Head of Government Relations & Policy at Leukaemia Foundation, shared the following post…
May 29, 2024, 06:00 | Blog
Jan Clark: I am delighted and honoured to have being selected as a 2024 IASLC Patient Advocate Educational Award winner
Oncogene Cancer Research shared a post by Jan Clark, Diagnostic Oncology National Sales Manager at…
May 27, 2024, 08:58 | Blog
Oncogene Cancer Research Chair Yvonne Diaz and talented advocates will lead a discussion on how to get more involved in advancing cancer outcomes
Oncogene Cancer Research shared a post on LinkedIn: ''Patient advocates are fundamental to advancing cancer…
May 24, 2024, 13:37 | Blog
Ben Smith: Great to see the A/Prof Natalie Taylor’s research highlighted at the Cancer Institute NSW fellows forum
Ben Smith, Senior Implementation Scientist at The Daffodil Centre, shared a post on X: “Great to see…
May 24, 2024, 13:24 | Blog
Jill Feldman: This is a fantastic resource created by Ambreen Sayani and members of EMPaCT to address power inequities
Jill Feldman shared a post by Ambreen Sayani, Scientist at Women's College Hospital, on LinkedIn,…
May 22, 2024, 10:43 | Blog
European Cancer Organisation is Celebrating the Healthcare Professionals Who Play a Pivotal Role in the Mental Well-Being of Cancer Patients
European Cancer Organisation shared a post on X: "On European Mental Health Awareness Week, we…
May 21, 2024, 08:11 | Blog
Clinical trials for patients with Breast Cancer Brain Metastases by Dana-Farber’s Breast Oncology Center
Dana-Farber’s Breast Oncology Center shared on X: “May is Brain Tumor Awarness Month and May 20th…
May 19, 2024, 15:31 | Societies
UICC is thrilled to have joined Hologic Incorporated
Union for International Cancer Control (UICC) shared on LinkedIn: “UICC is thrilled to have joined Hologic…
May 18, 2024, 06:53 | Blog
Christy Brown: We have never caught a break. Until now!
Christy Brown, Senior District Sales Manager – Midwest at Medtronic, shared a post on LinkedIn: "Please…
May 15, 2024, 01:41 | Blog
Patrizia Giannatempo: Ashish Kamat's contributions to NMIBC research are monumental
Patrizia Giannatempo, Medical Oncologist at IRCCS National Cancer Institute Foundation, shared on X: "Just had…
May 13, 2024, 15:33 | Opinion
Yelena Janjigian: Spring GEC research center retreat!
Yelena Janjigian shared on X/Twitter: "Thank you to Debbie's Dream Foundation: Curing Stomach Cancer for their…
May 12, 2024, 08:19 | Blog
Katie Coleman: Things not to say to a patient advocate
Katie Coleman, Founder of Chromophobe and Oncocytic Tumor Alliance (COA), shared a post on X/Twitter:…
May 11, 2024, 11:58 | Drugs
David Fajgenbaum: How is the price of a drug
David Fajgenbaum, Associate Professor of Medicine at University of Pennsylvania School of Medicine, shared on X:…
May 8, 2024, 22:54 | Blog
NEW LUNG CANCER EUROPE MEMBER: ALK POSITIVE EUROPE
Lung Cancer Europe shared a post on LinkedIn: “NEW LuCE MEMBER: ALK POSITIVE EUROPE We are…
May 4, 2024, 11:57 | Career
Stacey Tinianov: A 'reflex denial'
Stacey Tinianov, Founder, Advocates for Collaborative Education, shared on LinkedIn: "Still flummoxed by an element…
May 3, 2024, 20:02 | Blog
Wafik S. El-Deiry: Very grateful to the ACS for supporting cancer research in Rhode Island
Wafik S. El-Deiry shared a post on LinkedIn: “We enjoyed hosting the American Cancer Society Delegation…
May 3, 2024, 05:11 | Blog
Megan-Claire Chase: Moments where my words resonate with others outside fuels me with hope for health equity
Megan-Claire Chase, Breast Cancer Program Director at SHARE Cancer Support, shared a post by OncoDaily…
Apr 30, 2024, 16:14 | Stories
Pat Garcia-Gonzalez: Ethiopia Revisited - on the strength of the human spirit and progress in the face of adversity
Pat Garcia-Gonzalez, Chief Executive Officer at The Max Foundation, shared on LinkedIn: "Earlier last week,…
Apr 28, 2024, 15:36 | Blog
Megan-Claire Chase: April is National Minority Health Month
Megan-Claire Chase, Breast Cancer Program Director at SHARE Cancer Support, shared on their LinkedIn: ''April…
Apr 26, 2024, 16:21 | Blog
Fumiko Ladd Chino: Heartbroken that Sheila Johnson's incredible voice is gone
Fumiko Ladd Chino shared a post on X/Twitter: ''Heartbroken that Sheila Johnson's incredible voice is…
Apr 26, 2024, 08:22 | Blog
Yuksel Urun: Europe emphasized program implementation for patient and organization support
Yuksel Urun, Professor in Department of Medical Oncology at Ankara University School of Medicine, shared…
Apr 23, 2024, 11:04 | Blog
Rami Manochakian: Another great ASCO Advocacy Summit is over but OUR WORK IS NOT OVER
Rami Manochakian, Associate Professor and Thoracic Oncologist at Mayo Clinic, shared on X/Twitter: "THANK YOU…
Apr 14, 2024, 04:22 | Blog
Vincent Rajkumar: Of all my tweets on taking care of patients, here are 3 personal favorites
Vincent Rajkumar, Editor-in-Chief of Blood Cancer Journal, shared on X/Twitter: "Of all my tweets on…
Mar 25, 2024, 12:46 | Blog
Elyse Spatz Caplan: Reflecting on my time at the SGO annual meeting
Elyse Spatz Caplan, Senior Director, US Public Affairs, Community Engagement and Advocacy – Oncology at Gilead…
Mar 20, 2024, 16:21 | Blog
Elizabeth Franklin: A chapter on the impact of advocacy to advance patient-centered care
Elizabeth Franklin shared on LinkedIn: "I love the meditative and meaningful practice of writing, especially…
Feb 29, 2024, 14:33 | Blog
Bettina Ryll: Another publication that leaves you as a patient between a rock and a hard place
Bettina Ryll, Founder of MPN Europe, shared on LinkedIn: "So another publication that leaves you…
Feb 25, 2024, 16:22 | Blog
Joshua Omale: Engaging in grassroots initiatives has been the heartbeat of my childhood cancer advocacy journey
Joshua Omale, Cancer Advocate and a Student Member of the Coalition Against Childhood Cancer (CAC2),…
Feb 24, 2024, 17:10 | Blog
Bettina Ryll: How did we end up in a situation where we put clinical trials as a method before patients' lives?
Bettina Ryll, Founder of MPN Europe, shared on LinkedIn: "Working on my talk for the…
Feb 17, 2024, 16:11 | Blog
A superb meeting on cancer care was taking place in the European Parliament focusing on inequalities to access in Europe in general and Central and Southeastern Europe in particular - CECOG
Feb 14, 2024, 18:56 | Blog
Melanie Sisk: We are looking for volunteers who want to make a tangible impact in the lives of patients whose cancer has the PIK3CA mutation
Melanie Sisk, Metastatic Breast Cancer Patient Advocate, shared on X/Twitter: "Hello PIK3CA members. We are looking…
Feb 7, 2024, 17:40 | Blog
David Fajgenbaum: If being a rare disease patient has taught me anything, it’s that you need to be your own advocate
David Fajgenbaum, Physician-Scientist at the University of Pennsylvania, shared a post on LinkedIn: “If being a…
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