Patient Advocacy
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July, 2024
July 2024
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« Jun
Patient Advocacy
Jul 25, 2024, 21:45 |
Blog
Shine a Light on Sarcoma: Awareness, Prevention, and Hope - SHRO
Sbarro Health Research Organization (SHRO) shared on LinkedIn: "Sarcoma Awareness Month Shine a Light on…
Jul 16, 2024, 23:38 |
Blog
For Caleb Egwuenu best patient advocacy is about adapting to the local needs
Oncogene Cancer Research shared a post on LinkedIn: ''How can we use the best patient…
Jul 8, 2024, 08:33 |
Blog
ALK Summit 24 Agenda is out! - ALK Positive
ALK Positive shared the following post on X: "Our jam-packed ALK Summit 24 Agenda is…
Jul 7, 2024, 17:51 |
Blog
Stephen V. Liu: How do we encourage colleagues and patients to wait for biomarker results?
Stephen V. Liu shared on X: “Faced with an urgency to start therapy for newly…
Jul 7, 2024, 17:19 |
Blog
Vicki Durston: Highlighting the Power of Patient Advocacy
Vicki Durston, President of the General Assembly at ABC Global Alliance, shared a post on LinkedIn: …
Jul 1, 2024, 02:25 |
Blog
Insights from ESMOGI24 by Cathy Eng
ESMO GI 2024 took place from June 26 to 29 in Munich, Germany, featuring both…
Jun 28, 2024, 11:22 |
Blog
Richard Vines: An update on the work of Rare Cancers Australia in Asia
Richard Vines, Chair - Rare Cancers Australia, made the following post on LinkedIn: .…
Jun 27, 2024, 02:23 |
Blog
Sarah Adly: Our Article on 'Optimizing Outcomes in Advanced Renal Cell Carcinoma'
Sarah Adly, NCODA Fellow in Oncology, made the following post on LinkedIn: .…
Jun 16, 2024, 10:46 |
Blog
Mallinckrodt is partnering with admedicum
Lung Cancer Europe shared on X: “Mallinckrodt, a patient-focused pharmaceutical company, is partnering with admedicum, a…
Jun 15, 2024, 07:08 |
Blog
Caitlin Delaney: Looking Forward to Speaking at the Cancer Nurses Society of Australia Congress
Caitlin Delaney, Chair of the National Patient Advisory Committee and Patient-Partnered Research at VCCC Alliance, shared…
Jun 15, 2024, 06:48 |
Blog
By activating grassroots volunteers nationwide ACS CAN fights cancer in city halls, statehouses, and Congress
Lisa A. Lacasse, President at American Cancer Society Cancer Action Network, shared a post by American…
Jun 10, 2024, 06:58 |
Blog
Yasmine Hassan: Just wrapped up an amazing ASCO conference, now gearing up for the upcoming EHA
Yasmine Hassan, Global Patient Affairs Director at AstraZeneca, made the following post on LinkedIn: "Just…
Jun 10, 2024, 01:51 |
Blog
Zainab Shinkafi-Bagudu: I was pleased to offer a glimpse into our work as advocates in Nigeria at ASCO24
Zainab Shinkafi-Bagudu shared a post by ecancer X, adding the following: “Thank you ecancer. Amidst all…
May 31, 2024, 03:27 |
Blog
CML Horizons was an impressive gathering of global leaders exploring the latest in Chronic Myeloid Leukemia advocacy and care! - The Max Foundation
The Max Foundation shared on LinkedIn: “Last week's CML Horizons was an impressive gathering of global…
May 29, 2024, 06:43 |
Blog
Andrew Mosley: We were at Parliament House on World Blood Cancer Day to highlight the challenges faced by blood cancer patients
Andrew Mosley, Head of Government Relations & Policy at Leukaemia Foundation, shared the following post…
May 29, 2024, 06:00 |
Blog
Jan Clark: I am delighted and honoured to have being selected as a 2024 IASLC Patient Advocate Educational Award winner
Oncogene Cancer Research shared a post by Jan Clark, Diagnostic Oncology National Sales Manager at…
May 27, 2024, 08:58 |
Blog
Oncogene Cancer Research Chair Yvonne Diaz and talented advocates will lead a discussion on how to get more involved in advancing cancer outcomes
Oncogene Cancer Research shared a post on LinkedIn: ''Patient advocates are fundamental to advancing cancer…
May 24, 2024, 13:37 |
Blog
Ben Smith: Great to see the A/Prof Natalie Taylor’s research highlighted at the Cancer Institute NSW fellows forum
Ben Smith, Senior Implementation Scientist at The Daffodil Centre, shared a post on X: “Great to see…
May 24, 2024, 13:24 |
Blog
Jill Feldman: This is a fantastic resource created by Ambreen Sayani and members of EMPaCT to address power inequities
Jill Feldman shared a post by Ambreen Sayani, Scientist at Women's College Hospital, on LinkedIn,…
May 22, 2024, 10:43 |
Blog
European Cancer Organisation is Celebrating the Healthcare Professionals Who Play a Pivotal Role in the Mental Well-Being of Cancer Patients
European Cancer Organisation shared a post on X: "On European Mental Health Awareness Week, we…
May 21, 2024, 08:11 |
Blog
Clinical trials for patients with Breast Cancer Brain Metastases by Dana-Farber’s Breast Oncology Center
Dana-Farber’s Breast Oncology Center shared on X: “May is Brain Tumor Awarness Month and May 20th…
May 19, 2024, 15:31 |
Societies
UICC is thrilled to have joined Hologic Incorporated
Union for International Cancer Control (UICC) shared on LinkedIn: “UICC is thrilled to have joined Hologic…
May 18, 2024, 06:53 |
Blog
Christy Brown: We have never caught a break. Until now!
Christy Brown, Senior District Sales Manager – Midwest at Medtronic, shared a post on LinkedIn: "Please…
May 15, 2024, 01:41 |
Blog
Patrizia Giannatempo: Ashish Kamat's contributions to NMIBC research are monumental
Patrizia Giannatempo, Medical Oncologist at IRCCS National Cancer Institute Foundation, shared on X: "Just had…
May 13, 2024, 15:33 |
Opinion
Yelena Janjigian: Spring GEC research center retreat!
Yelena Janjigian shared on X/Twitter: "Thank you to Debbie's Dream Foundation: Curing Stomach Cancer for their…
May 12, 2024, 08:19 |
Blog
Katie Coleman: Things not to say to a patient advocate
Katie Coleman, Founder of Chromophobe and Oncocytic Tumor Alliance (COA), shared a post on X/Twitter:…
May 11, 2024, 11:58 |
Drugs
David Fajgenbaum: How is the price of a drug
David Fajgenbaum, Associate Professor of Medicine at University of Pennsylvania School of Medicine, shared on X:…
May 8, 2024, 22:54 |
Blog
NEW LUNG CANCER EUROPE MEMBER: ALK POSITIVE EUROPE
Lung Cancer Europe shared a post on LinkedIn: “NEW LuCE MEMBER: ALK POSITIVE EUROPE We are…
May 4, 2024, 11:57 |
Career
Stacey Tinianov: A 'reflex denial'
Stacey Tinianov, Founder, Advocates for Collaborative Education, shared on LinkedIn: "Still flummoxed by an element…
May 3, 2024, 20:02 |
Blog
Wafik S. El-Deiry: Very grateful to the ACS for supporting cancer research in Rhode Island
Wafik S. El-Deiry shared a post on LinkedIn: “We enjoyed hosting the American Cancer Society Delegation…
May 3, 2024, 05:11 |
Blog
Megan-Claire Chase: Moments where my words resonate with others outside fuels me with hope for health equity
Megan-Claire Chase, Breast Cancer Program Director at SHARE Cancer Support, shared a post by OncoDaily…
Apr 30, 2024, 16:14 |
Stories
Pat Garcia-Gonzalez: Ethiopia Revisited - on the strength of the human spirit and progress in the face of adversity
Pat Garcia-Gonzalez, Chief Executive Officer at The Max Foundation, shared on LinkedIn: "Earlier last week,…
Apr 28, 2024, 15:36 |
Blog
Megan-Claire Chase: April is National Minority Health Month
Megan-Claire Chase, Breast Cancer Program Director at SHARE Cancer Support, shared on their LinkedIn: ''April…
Apr 26, 2024, 16:21 |
Blog
Fumiko Ladd Chino: Heartbroken that Sheila Johnson's incredible voice is gone
Fumiko Ladd Chino shared a post on X/Twitter: ''Heartbroken that Sheila Johnson's incredible voice is…
Apr 26, 2024, 08:22 |
Blog
Yuksel Urun: Europe emphasized program implementation for patient and organization support
Yuksel Urun, Professor in Department of Medical Oncology at Ankara University School of Medicine, shared…
Apr 23, 2024, 11:04 |
Blog
Rami Manochakian: Another great ASCO Advocacy Summit is over but OUR WORK IS NOT OVER
Rami Manochakian, Associate Professor and Thoracic Oncologist at Mayo Clinic, shared on X/Twitter: "THANK YOU…
Apr 14, 2024, 04:22 |
Blog
Vincent Rajkumar: Of all my tweets on taking care of patients, here are 3 personal favorites
Vincent Rajkumar, Editor-in-Chief of Blood Cancer Journal, shared on X/Twitter: "Of all my tweets on…
Mar 25, 2024, 12:46 |
Blog
Elyse Spatz Caplan: Reflecting on my time at the SGO annual meeting
Elyse Spatz Caplan, Senior Director, US Public Affairs, Community Engagement and Advocacy – Oncology at Gilead…
Mar 20, 2024, 16:21 |
Blog
Elizabeth Franklin: A chapter on the impact of advocacy to advance patient-centered care
Elizabeth Franklin shared on LinkedIn: "I love the meditative and meaningful practice of writing, especially…
Feb 29, 2024, 14:33 |
Blog
Bettina Ryll: Another publication that leaves you as a patient between a rock and a hard place
Bettina Ryll, Founder of MPN Europe, shared on LinkedIn: "So another publication that leaves you…
Feb 25, 2024, 16:22 |
Blog
Joshua Omale: Engaging in grassroots initiatives has been the heartbeat of my childhood cancer advocacy journey
Joshua Omale, Cancer Advocate and a Student Member of the Coalition Against Childhood Cancer (CAC2),…
Feb 24, 2024, 17:10 |
Blog
Bettina Ryll: How did we end up in a situation where we put clinical trials as a method before patients' lives?
Bettina Ryll, Founder of MPN Europe, shared on LinkedIn: "Working on my talk for the…
Feb 17, 2024, 16:11 |
Blog
A superb meeting on cancer care was taking place in the European Parliament focusing on inequalities to access in Europe in general and Central and Southeastern Europe in particular - CECOG
Feb 14, 2024, 18:56 |
Blog
Melanie Sisk: We are looking for volunteers who want to make a tangible impact in the lives of patients whose cancer has the PIK3CA mutation
Melanie Sisk, Metastatic Breast Cancer Patient Advocate, shared on X/Twitter: "Hello PIK3CA members. We are looking…
Feb 7, 2024, 17:40 |
Blog
David Fajgenbaum: If being a rare disease patient has taught me anything, it’s that you need to be your own advocate
David Fajgenbaum, Physician-Scientist at the University of Pennsylvania, shared a post on LinkedIn: “If being a…
Jan 31, 2024, 15:07 |
Blog
Stephanie Chuang: Love when medical conferences make space for patient advocacy
Stephanie Chuang, Founder of The Patient Story, shared on X: “Love when medical conferences make…
Jan 4, 2024, 16:53 |
Positive
Tatiana Prowell: ... how much she has given to the lung cancer community
Tatiana Prowell shared a post by Ivy Elkins, Co-Founder of EGFR Resisters, on X/Twitter, adding:…
Oct 24, 2023, 15:24 |
Dialogues
5 min OncoDaily Updates with Chandler Park: Petros Grivas on the patient advocacy groups
[embed]https://www.youtube.com/watch?v=Ap9VbtYaz4o[/embed]
Oct 21, 2023, 19:39 |
Blog
Nirmala Bhoo Pathy: A prerequisite to putting patients at the heart of cancer care is knowing what they need
Nirmala Bhoo Pathy, Professor of Epidemiology at the University of Malaya, shared on her LinkedIn…
Oct 10, 2023, 21:11 |
Blog
Laura Esfeller: The world has lost the incredible Kelly O’Leary and we are all poorer because of it.
Laura Esfeller, Kidney Cancer Survivor and Patient Advocate, made the following post on Twitter: "The…
Sep 3, 2023, 17:31 |
Opinion
Denise Gouge: Patients deserve a seat at the table.
Denise Gouge, Oncology Account Executive at Hologic, recently posted on LinkedIn: "I am the 1%.…
Aug 23, 2023, 23:21 |
Opinion
Marianne Sarcich: Advocacy matters. And it can move mountains.
Marianne Sarcich, Breast Health National Advocate, Health Literacy Champion, Health Writer and Founder of Breast…
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Posts:
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The largest philanthropic partnership in The V Foundation’s history - Dolphins Cancer Challenge
Glecirasib: A Promising Novel KRAS G12C Inhibitor in Clinical Development
How the Médecins Sans Frontières Journal Inspired a Lifetime of Humanitarian Service: Paul Spiegel
OncoDaily Party and Yvonne Award Photos - Part 1
Michael Douglas: The Untold Story of His Battle Against Cancer
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