Yogesh Kalkonde, Public Health Practitioner and Executive Committee Member at Sangwari-People’s Association for Equity and Health, shared a post on LinkedIn:
“It didn’t happen in a clinic.
There were no prescriptions being written, no hurried consultations. Instead, patients, caregivers, and healthcare providers sat together with time, openness, and a shared purpose.
The conversation was about sickle cell disease. It was about lived experiences of pain, suffering, resilience, gaps in care, and what truly matters to those navigating the condition every day.
As stories unfolded, something shifted. Hierarchies softened. Listening deepened. And the usual boundaries between “provider” and “patient” began to blur.
What emerged wasn’t just insight but a reminder that meaningful public health solutions are not designed for communities, but with them.
This is what it can look like when we move beyond clinics and into conversations.
We need to create shared spaces and patient voices to take this conversations forward…
Thank you Nivarana team for sharing the excerpts of these conversations…”
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