Stacey Tinianov, Founder, Executive Director at Advocates for Collaborative Education, shared on LinkedIn:
“Phenomenal Day 1 of the National Cancer Policy Summit with The National Academies of Sciences, Engineering, and Medicine. After 20 years, much has improved in cancer research, care, and policy but we still have a long way to go to reduce the true burden(s) of cancer and improve outcomes and quality-of-life for those with a diagnosis or a history of cancer.
Insightful and informative presentations and keynotes from Monica Bertagnolli, Dr. Rob Winn, Tony Letai and more but ‘Changing the Narrative: Perspectives from Patients, Caregivers, and Community-Based Organizations’ was, in my opinion, the icing on the cake in walking the walk to a well-rounded, representative workshop.
Moderated by Sarah Greene and Larissa Nekhlyudov this panel included presentations from advocates Sarah, Stephanie Gayhart, Darcie Champagne Wells, Kimberly Richardson, and Linda Burhansstipanov on the challenges and opportunities to improve/evolve a healthcare and community ecosystem that meets the needs of all people. We heard not just ‘how might we’ but how many of us ARE actually collaborating with each other and with our communities to drive meaningful change.
Looking forward to next steps to move from presentations to practice in establishing policies to support the next 20 years of cancer policy around equitable and accessible cancer research, treatment, and human-centered care.”
You can also read: Stacey Tinianov: We Are Changing the Narrative in Cancer Care with Incredible Patient Advocates.