Melissa Haendel, Director of Precision Health and Translational Informatics at University of North Carolina at Chapel Hill, shared a post on LinkedIn:
“Was delighted to read National Organization for Rare Disorders‘ funding drive post likening patient journeys to the monarch butterfly.
There comes a day when a patient’s Rare Disease finally gets a name. The Monarch Initiative has been helping patient organizations and clinicians give every disease a trackable and classifiable name and identifier in the Mondo community resource.
NORD has been a key contributor, alongside dozens of other global organizations aiming to help every patient find their way.
Consider giving to NORD today.”
You can also read: Rare Cells, Big Stories: What Circulating Tumor Cells Can Tell Us About Cancer
