JJ Singleton: Bringing the Patient Voice to ASCO Community of Practice Survivorship Meeting
JJ Singleton/LinkedIn

JJ Singleton: Bringing the Patient Voice to ASCO Community of Practice Survivorship Meeting

JJ Singleton, Research Advocate at Fight Colorectal Cancer, adolescent and young adult (AYA) cancer survivor, shared a post on LinkedIn:

“This morning I did something I never thought possible. At the largest oncology conference in the world I was invited and asked to sit on a panel with amazing and Incredible medical professionals and talk about survivorship from a patient experience at the ASCO Community of Practice Survivorship meeting.

Advocacy has taken me many places and I’ve got to do many things that are still hard for me to believe much less understand how or why even if the imposter syndrome is high I’m forever grateful and appreciative.

Today I got to speak and use my voice my experiences and the experiences of my friends and community to answer questions and inform medical professionals from across the world about the ups an downs the good the bad the ugly and the hurdles and barriers we face as cancer patients and survivors. From the people who are NED remission or on forever treatment.

It’s complicated it’s hard and there are no simple answers but listening and learning from us patients and continuing to try and to work on improving survivorship is what I hope I was able to get across.

Now to relax an head home tomorrow for treatment Wednesday.”

JJ Singleton: Bringing the Patient Voice to ASCO Community of Practice Survivorship Meeting

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