Hayley Jones, Director at McCabe Centre for Law and Cancer, Co-Chair at Australian WHO Collaborating Centre Network, shared a post on LinkedIn:
“This week in Lyon, I was proud to present the Legal Framework for Cancer Registries Toolkit at the IARC60 conference!
Only 21% of the world’s population is covered by a population-based cancer registries. Laws play a critical role in the Global Initiative for Cancer Registry Development by mandating reporting, supporting timely data collection, and safeguarding privacy. Strong legal frameworks are essential to ensure systematic, high-quality cancer data: enabling countries to identify and address inequities and align with international best practices.
Developed by Sondra Davoren and colleagues at the McCabe Centre for Law and Cancer in collaboration with the IARC – International Agency for Research on Cancer / World Health Organization and the African Cancer Registry Network, this toolkit draws on global legal analysis and expert input to provide a practical, adaptable approach for countries establishing or strengthening population-based cancer registries.
There is no one-size-fits-all approach, but the right legal tools can provide a powerful head start.
You can access the toolkit here.
We will also be hosting a webinar soon to introduce the toolkit and share how it can be used in practice.
It was an honour to work with Sondra Davoren, Ma-Anne Rosales-Sto. Domingo, Rachel Kitonyo, together with Freddie Bray at IARC and Max Parkin and Biying Liu of the AFCRN on this project, with support from Magdalena Paczkowski at Vital Strategies. It was a real pleasure to meet Max and Biying for the first time in person, after many collaborative Zoom calls!
We hope that wide dissemination and feedback will support ongoing refinement of the toolkit, strengthening approaches to cancer registry regulation worldwide, and ultimately contributing to greater equity.”
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