Françoise Meunier, Vice President of the Royal Academy of Medicine of Belgium, and Founder of the European Initiative on Ending Discrimination Against Cancer Survivors, shared a post on LinkedIn:
“On 4 November 2025, I hosted a closed-door virtual roundtable bringing together stakeholders from France, Belgium, Italy, Slovenia, the Netherlands, and Romania. We discussed the current process for design, implementation, and potential future harmonisation of national reference grids related to the legislations on the Right To Be Forgotten for cancer survivors.
These grids are essential tools to ensure fair access to insurance and financial products, reflecting real improvements in cancer prognosis rather than obsolete one-size-fits-all policies.
Our discussions highlighted clear priorities for national grid development:
• Learn from pioneering countries – no need to reinvent the wheel
• Use high-quality registry data and scientific evidence
• Establish multi-stakeholder work working groups, including medical experts, insurers, patient representatives, and regulators from the outset
• Standardise terminology and assumptions
• Update grids regularly to reflect emerging therapies and scientific evidence.
• Communicate clearly so survivors understand their rights
And at the European level:
• Create dedicated working groups on data and methodology
• Strengthen peer-to-peer learning between Member States
• Leverage EU-wide data initiatives to validate and align approaches
Read the Full roundtable report here.”
More posts featuring Françoise Meunier on OncoDaily.
