Cinzia Brunelli, Senior Researcher at IRCCS National Cancer Institute Foundation, shared on LinkedIn:
“Quality of life as a core dimension of cancer care planning and evaluation: our EUonQoL workshop at EPH 2026 in Bilbao.
Survival matters, but it is only part of the story.
For people living with or beyond cancer, physical, psychological, existential and social wellbeing are just as important. Yet quality of life is still rarely measured at population level across Europe.
This is the gap EUonQoL set out to fill, in line with Europe’s Beating Cancer Plan and the EU Cancer Mission.
At the European Public Health Conference we presented the full picture of the project in five talks:
- Development and validation of the EUonQoL-Kit: conceptual framework, indicator selection, and results showing scientific robustness and cross-language equivalence
- The EUonQoL-Kit and the new digital Survey Hub: features, accessibility, and how it enables scalable QoL data collection across Europe
- Patient and Public Involvement: how patients, survivors and family caregivers shaped the project, strengthening its relevance and legitimacy
- Implementation: how QoL monitoring can be built into cancer surveillance and policy evaluation at local, national and EU level
- Sustainability and EU policy outreach: stakeholder engagement and pathways for long-term uptake beyond the project’s lifetime
We were pleased by the strong turnout and the lively discussion.
The audience raised thoughtful questions and offered valuable insights, and showed real interest in the project’s results.
That kind of engagement is exactly what we need to move quality of life from a research topic to a routine part of cancer care and policy.
Thank you to everyone who joined us, and to all EUonQoL partners, patients and caregivers who made this work possible.”
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