What Does Truly Patient-Centred Childhood Cancer Care Look Like? – Childhood Cancer International
Childhood Cancer International/ childhoodcancerinternational.org

What Does Truly Patient-Centred Childhood Cancer Care Look Like? – Childhood Cancer International

Childhood Cancer International shared Alejandra Mendez’s post on LinkedIn, adding:

“What does truly patient-centred childhood cancer care look like?

In a powerful conversation with OncoDaily Global Health Unpacked, CCI Vice-President Alejandra Mendez explores why childhood cancer is not only a medical diagnosis – and why people with lived experience must help shape the future of care.

Among the topics discussed:

  • Why medical breakthroughs alone are not enough if children cannot access care
  • Why People with Lived Experience (PWLE) are experts in their own experience, and why their inclusion in research, policy design, clinical care models, and even healthcare facilities is essential
  • Why patient involvement must go beyond storytelling and evolve into true partnership
  • The importance of long-term follow-up care and fertility preservation

As Alejandra highlights, data tells us what is happening – but lived experience helps us understand what it means.

A thoughtful and insightful conversation on equity, partnership, and the future of childhood cancer care.”

Alejandra Mendez, Vice President of Childhood Cancer International, Recognized Among 100 Influential Women in Oncology in 2025 by OncoDaily, shared a post on LinkedIn:

“Thank you, OncoDaily, for this beautiful interview and for helping to bring visibility to the voices of people with lived experience in childhood cancer.

I am deeply grateful for the opportunity to help amplify this important message: that children, survivors, families, and caregivers must be meaningfully included in the decisions that shape cancer care.

A very special thank you to Gvantsa Khizanishvili, for your empathy, warmth, and evident sensitivity to this topic. Thank you for such an inspiring and meaningful conversation!

Lived experience is expertise — and it must be part of building more humane, equitable, and effective health systems for children with cancer and their families.”

Proceed to the video attached to the post.

You can also read: Ringing the Bell Is Not the End of the Story, but the Beginning of a New One: Alejandra Méndez

What Does Truly Patient-Centred Childhood Cancer Care Look Like? - Childhood Cancer International