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Bogda Koczwara: Misdiagnoses, Financial Burden and Barriers in Rare Cancer Care in Australia
Sep 4, 2025, 12:26

Bogda Koczwara: Misdiagnoses, Financial Burden and Barriers in Rare Cancer Care in Australia

Bogda Koczwara, Director of Australian Research Centre for Cancer Survivorship, shared on LinkedIn:

The Rare Cancers Australia report is a sobering read.

– 1 in 4 respondents with a rare or less common cancer said they were initially diagnosed with another condition.
– 46% of people diagnosed with a rare or less common cancer after noticing symptoms felt that their symptoms were overlooked.
– 59% respondents impacted by a rare or less common cancer reported that their cancer experience made their household financial situation worse.
– there was significant variation in access across Australia (see the travel diagram figure as example).

The report provides important recommendations:

  • deliver an ambitious National Cancer Data Framework.
  • review subsidies for imaging.
  • develop suspected cancer referral guidelines.
  • accelerate implementation of genomics into cancer care.
  • remove barriers to access to treatment.
  • increase financial support to patients for accessing treatment away from home.
  • ensure access to tailored information and supportive care.

Now let’s put these into action!

See full report.”

Bogda Koczwara: Misdiagnoses, Financial Burden and Barriers in Rare Cancer Care in Australia

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