Angela Mastronuzzi, Head of Neuro-Oncology Unit at Bambino Gesù Children’s Hospital and President of AIEOP, shared a post on LinkedIn:
“Mapping integrated care for brain tumour–related epilepsy in the Italian RIN–IRCCS network just published with Neurological Sciences of Springer Nature.
Brain tumour-related epilepsy is a frequent and disabling complication of primary and metastatic brain tumours, requiring multidimensional and coordinated management.
A national, multicentre survey was conducted across participating centres. This study aimed to assess the current organization of care for brain tumour-related epilepsy within the Italian Network of Neuroscience and Neuro-rehabilitation Research Institutes (RIN).
This survey reveals substantial and actionable variability in the organisation and resources dedicated to the management of brain tumour-related epilepsy (BTE) across the RIN network, reflecting the absence of dedicated guidelines. Although centres exhibit strong adherence to current best practices, critical disparities in expertise, and essential diagnostics and technological resources persist.
These findings underscore the need for European and national guidelines, and their translation into harmonised CP tailored specifically for BTE. Implementing such pathways would represent a transformative step toward consistent, high-quality, and equitable care across neuro-oncological settings, narrowing current gaps and improving patient outcomes.”
Title: Mapping integrated care for brain tumour–related epilepsy in the Italian RIN–IRCCS network
Authors: Elena Anghileri, Alessia Marcassoli, Veronica Villani, Giuseppe Didato, Claudia Milanaccio, Elena Pasini, Elisa Bennicelli, Pasquale Persico, Paola Bini, Giulia Berzero, Angela Mastronuzzi, Massimo Filippi, Luca De Palma, Giorgio Arcara, Anna Bellini, Marta Maschio, Andrea Pace, Mariangela Farinotti
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