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Thanks to the tireless efforts, we’ve secured a victory for people living with rare diseases and their families
Jun 18, 2023, 14:33

Thanks to the tireless efforts, we’ve secured a victory for people living with rare diseases and their families

In a post by on Linkedin, it says, “The Histiocytosis Association has partnered with the National Organization for Rare Disorders (NORD) for many years. Together, along with other NORD Rare Action Network Advocates, we have collaborated for change at the national level for rare diseases, including histiocytosis. Thanks to the tireless efforts, we’ve secured a victory for people living with rare diseases and their families! On June 3rd, President Biden signed into law the bipartisan debt ceiling deal which protects access to affordable health care through Medicaid without imposing work requirements. Thank you to every advocate who sent messages to Congress and President Biden and shared NORD’s action alert with friends and family – together, we helped protect access to essential, affordable health care through Medicaid for millions of Americans affected by rare diseases.”

Read more here: https://lnkd.in/ehEqGMP9

 

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