SIOP PPO shared on LinkedIn:
“Fear of Cancer Recurrence
Parents of childhood cancer survivors often face intense fear of recurrence – a distress that impacts wellbeing and family life.
This study adapted the Fear of Recurrence Therapy (FORT) for virtual delivery to parents, creating Parent – FORT.
Key highlights:
- Co – designed with parents to ensure relevance and usability.
- Added exercises on parent – child conversations and identity after cancer.
- Broadened inclusion criteria to support families earlier in survivorship.
- Usability trial showed strong connectedness, satisfaction, and readiness for future testing.
Frontiers in Psychology.”
Title: Adaptation and usability study of the fear of cancer recurrence therapy for parents of survivors of childhood cancer (Parent – FORT)
Authors: Celeste Holy, Jeffery Brinson, Janelle Gibson-Haerle, K. Brooke Russell, Lesleigh S. Abbott, Lauriane Giguère, Amy Givogue, Gregory M. T. Guilcher, Lauren C. Heathcote, Emily Johnson, Kimberly McMillan, Christine Maheu, Wendy Pelletier, Fiona Schulte, Héloïse Sirois-Leclerc, Perri R. Tutelman, Sophie Lebel

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