Aurora Mirabile, Consultant Medical Oncologist, Head of Head and Neck Cancer Diagnosis and Treatment Section, Division of Otorhinolaryngology, IRCCS Ospedale San Raffaele, shared on LinkedIn:
“Proud to share our latest publication in ESMO Open!
How can we improve the quality of care for patients with rare head and neck cancers?
Our EURACAN registry study, including 795 patients treated across Italian expert centres, highlights substantial heterogeneity in treatment strategies and frequent delays in treatment initiation, particularly when interhospital referrals and multimodal approaches are required.
The key message: expertise alone is not enough. Structured referral pathways, effective multidisciplinary collaboration and timely access to treatment are essential to improving care for patients with rare cancers.
Grateful to Trama Annalisa , prof. Lisa Licitra and all co-authors for this valuable multicentre collaboration.”
Title: Pattern and quality of care for rare head and neck cancers treated in expert centres: the experience of the registry of the European Reference Network on Rare Adult Solid Cancers (EURACAN)
Authors: A. Trama, L. Licitra, C. Bergamini, M. Gil Sanjines, S. Bonfarnuzzo, E. Orlandi, B. Vischioni, M. Tagliabue, R. De Berardinis, M. Ansarin, V. Manciocco, F. Nardozza, G. Mercante, A. Mirabile, G. Mari, F. Gaino, P. de Franco, E. Cavalera, V. Gregorc, V. Valentini, L. Botta.

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