Opinion

Mark Lewis: New MEN1 Guidelines – My Personal Perspective As a Patient, Parent, and Physician

Mark Lewis/netrf.org

Jun 17, 2025, 10:50

Mark Lewis: New MEN1 Guidelines – My Personal Perspective As a Patient, Parent, and Physician

Mark Lewis, Director of Gastrointestinal Oncology at Intermountain Healthcare in Utah, shared a post by The Lancet Diabetes and Endocrinology on X, adding:

“As a patient, parent, and physician (my own “3 Ps” of MEN1) I tried to impart my personal perspective to these guidelines, which I hope will be helpful to any clinicians treating the syndrome but most of all to families trying to mitigate the lifelong risk of hereditary tumors.

MEN1 Guidelines

I am also profoundly grateful for the opportunity to be an invited co-author of this manuscript with true global leaders in the fields of endocrinology and oncology, who have been profoundly welcoming to me since my diagnosis in 2009 and entry into advocacy shortly thereafter.

Mark Lewis: New MEN1 Guidelines - My Personal Perspective As a Patient, Parent, and Physician

The flowchart above was partly inspired by how I’ve thought through approaches to young patients like my son but this algorithm is more broadly applicable.”

Mark Lewis: New MEN1 Guidelines - My Personal Perspective As a Patient, Parent, and Physician

Quoting The Lancet Diabetes and Endocrinology‘s post:

“New—Multiple endocrine neoplasia type 1 (MEN1): recommendations and guidelines for best practice MEN1 FREE to read with registration (also FREE).

Title: Multiple endocrine neoplasia type 1 (MEN1): recommendations and guidelines for best practice

Authors: Maria Luisa Brandi, Carolina R C Pieterman, Katherine A English, Kate E Lines, Omair A Shariq, Francesca Marini, Thomas Cuny, Mark A Lewis, Constantine A Stratakis, Nancy D Perrier, Steven G Waguespack, Frederic Castinetti, Gerlof D Valk, Rajesh V Thakker

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Mark Lewis: New MEN1 Guidelines - My Personal Perspective As a Patient, Parent, and Physician

Treatments for MEN1-associated endocrine tumours: three systematic reviews and a meta-analysis.

Title: Treatments for MEN1-associated endocrine tumours: three systematic reviews and a meta-analysis

Authors: Katherine A English, Carolina R C Pieterman, Francesca Marini, Kate E Lines, Thomas Cuny, Rosella Saulle, Omair A Shariq, Zuzana Mitrova, Frederic Castinetti, Steven G Waguespack, Maria Luisa Brandi, Rajesh V Thakker, Gerlof D Valk, Silvia Minozzi

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Mark Lewis: New MEN1 Guidelines - My Personal Perspective As a Patient, Parent, and Physician

Adrian F Daly comments on: Experience evolves into evidence in the new MEN1 guidelines MEN1 FREE to read with registration (also FREE).”

Title: Experience evolves into evidence in the new MEN1 guidelines

Authors: Adrian F Daly

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Mark Lewis: New MEN1 Guidelines - My Personal Perspective As a Patient, Parent, and Physician

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Opinion

Mark Lewis: New MEN1 Guidelines – My Personal Perspective As a Patient, Parent, and Physician

“As a patient, parent, and physician (my own “3 Ps” of MEN1) I tried to impart my personal perspective to these guidelines, which I hope will be helpful to any clinicians treating the syndrome but most of all to families trying to mitigate the lifelong risk of hereditary tumors.

I am also profoundly grateful for the opportunity to be an invited co-author of this manuscript with true global leaders in the fields of endocrinology and oncology, who have been profoundly welcoming to me since my diagnosis in 2009 and entry into advocacy shortly thereafter.

The flowchart above was partly inspired by how I’ve thought through approaches to young patients like my son but this algorithm is more broadly applicable.”

“New—Multiple endocrine neoplasia type 1 (MEN1): recommendations and guidelines for best practice MEN1 FREE to read with registration (also FREE).

Adrian F Daly comments on: Experience evolves into evidence in the new MEN1 guidelines MEN1 FREE to read with registration (also FREE).”