Roger Wilson’s journey from a misdiagnosis to creating a charity dedicated to sarcoma patients – Sarcoma UK

Sarcoma UK shared a post by Shushan Hovsepyan on LinkedIn, adding:

“Fascinating interview with Roger Wilson, founder of Sarcoma UK, where he discussed his journey from a misdiagnosis in 1999 to creating a charity dedicated to sarcoma patients.

Roger reflects on the early challenges of Sarcoma UK, key achievements like the first British Sarcoma Group conference and launching research grants.

He emphasises the charity’s commitment to patient-centred care, support, and advocacy.

He also shares insights on leadership and his ongoing passion for contributing to sarcoma research and awareness.

Thanks to OncoDaily for sharing.”

Quoting Shushan Hovsepyan’s post:

“Another episode of Sarcoma Talk on OncoDaily is out!

I had the pleasure of interviewing Roger Wilson, the founder of Sarcoma UK.

His enthusiasm and motivation are truly contagious for the global sarcoma community.

Thank you, Roger, for your incredible work and for sharing your story with me.”

Source: Sarcoma UK/LinkedIn and Shushan Hovsepyan/LinkedIn

Roger Wilson is the honorary President of Sarcoma Patients Euronet and remains active with the NCRI through the NCRI Consumer Forum. In 2011 he was awarded the CBE ‘for services to healthcare’. He has also received an Honorary MD from the University of Sheffield and an Honorary LLD from the University of Lancaster.

In 2015 he was elected to be a Member of Cancer Research UK. In 2019 Sarcoma Patients Euronet gave him a Lifetime Achievement Award. Between 2004 and 2007 he chaired the NCRI Consumer Liaison Group and sat on the Board of the National Cancer Research Institute. He has also chaired the National Prevention Research Initiative, a workstream of the National Cancer Survivorship Initiative, and for five years was on the National Cancer Director’s Advisory Board. He founded the charity Sarcoma UK in 2003 and was a co-founder of Sarcoma Patients Euronet in 2009.

Shushan Hovsepyan is a pediatric oncologist and adjunct assistant professor at the Yerevan State Medical University. Currently, she is the Editor-in-Chief of OncoDaily Medical Journal.

She completed her clinical fellowship at the National Institute of Cancer in Milan, Italy and at the St. Anna Children’s Research Hospital in Austria Furthermore, she held a research fellowship position at the European Organisation for Research and Treatment of Cancer in Brussels, Belgium.

She is a former co-chair of the SIOP Global Health Network Education and Training Working Group.