Ruben Mesa, President, Cancer National Service Line at Advocate Health, shared on LinkedIn:
“Excited to see this new resource for MPN patients, crafted by MPN patients for MPN Patients!
MPN Universe is a new international, non-profit patient association for people living with myeloproliferative neoplasms.
It launched in Barcelona on 5 November 2026 and was presented at the 6th Global MPN Symposium.
Its core aim is to give MPN patients something they have lacked so far: one democratic, mandated voice across borders.
More than 2,000 participants in over 30 countries vote on positions through its online platform. This lets the association speak with verified support to clinicians, researchers, industry and regulators.
For patients, it offers free, anonymous tools in 15 languages:
MPN Journal: a daily tracker for symptoms, lifestyle, lab values and medication. It gives patients a clear overview to discuss with their haematologist.
MPN World: an anonymous community where patients ask questions, share experiences and support each other in their own language.
MAGIC: an MPN-specific AI that answers questions from vetted sources and does not guess when no reliable answer exists.
HemaData: anonymised insights from patient profiles that help patients and researchers see patterns.
TrialBridge (coming soon): matching patients to relevant research and clinical trials.
Together, these tools help patients understand their disease, prepare for appointments and feel less alone.
At the same time, they strengthen the voice the association brings to the table.
Read more: One worldwide community of MPN patients, democratically represented.”
Other articles from Ruben Mesa on OncoDaily.