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Bringing together European Network of Youth Cancer Survivors Ambassadors – CCI Europe

Childhood Cancer International - Europe/LinkedIn

Feb 16, 2025, 07:50

Bringing together European Network of Youth Cancer Survivors Ambassadors – CCI Europe

Childhood Cancer International – Europe shared a post on LinkedIn:

“Last week, on World Cancer Day (February 4, 2025), the European Commission hosted Youth Dialogue 2025, bringing together European Network of Youth Cancer Survivors Ambassadors (ages 18-30) for a discussion with the new EU Health Commissioner, Olivér Várhelyi.

Survivors representatives shared their experiences and key issues that need more attention, including:

Long-Term Follow-Up Care: Many cancer survivors are discharged without a proper follow-up plan, leaving their long-term care overlooked. Critical aspects like transition care, psychosocial support, and career or education guidance are often left to chance – sometimes realized too late. Cancer doesn’t end when treatment does; many survivors face lasting physical and psychological effects, including disabilities, requiring specialized care.

Awareness of key policies: Initiatives like the Right To Be Forgotten exist, but not everyone knows about them, how they work, and how they can be implemented in different countries; and this needs to change.

Support for young survivors: Getting cancer as a young person is very different from facing it later in life. hashtag#eucayasnet platform gives young survivors a space to connect, share experiences, and support each other, creating a real sense of community.

Equal Access To Care: Every child with cancer and every individual with lived experience of cancer should have access to the best possible care, no matter where they live or their background.

Do you want to watch the whole discussion? Find the recording here.”

Bringing together European Network of Youth Cancer Survivors Ambassadors - CCI Europe