Begoña Nafría Escalera: Today, I’m happy for the children who live with rare diseases

Begoña Nafría Escalera, Patient Engagement in Research Coordinator at Hospital Sant Joan de Déu, shared on LinkedIn:

“Today, I’m happy, but not for me – for the children who live with rare diseases.

Dreams come true, and today we have seen that with the support of an important Spanish foundation (59 millions of euros), the ÚNICAS project can move forward soon.

Personalized medicine is the future for researching and treating rare diseases, which require a high level of expertise, technologies, and facilities.

If you want to know more about the reason for my happiness, please read this piece of news. It is in Spanish, but you can translate it into other languages by copying the link into Google Translate.

Piece of news.
Video (subtitles in English).”

Source: Begoña Nafría Escalera/LinkedIn