November, 2024
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Debbie Drell: Such a joy to join Ron Bartek and rare disease patient advocates for an entire week dedicated to Rare Disease Day 2024
Mar 2, 2024, 12:27

Debbie Drell: Such a joy to join Ron Bartek and rare disease patient advocates for an entire week dedicated to Rare Disease Day 2024

Debbie Drell, Associate Director, Lead, Friedreich Ataxia, and Rare Disease Patient Advocacy at Biogen, recently shared on LinkedIn:

“Such a joy to join Ron Bartek, Friedreich’s Ataxia Research Alliance (FARA) President and Co-Founder, and nearly 1,000 rare disease patient advocates for an entire week dedicated to Rare Disease Day 2024.”

Debbie Drell: Such a joy to join Ron Bartek and rare disease patient advocates for an entire week dedicated to Rare Disease Day 2024

Source: Debbie Drell/LinkedIn