Stacey Tinianov, Founder and Executive Director at Advocates for Collaborative Education, shared Advocates for Collaborative Education’s post on LinkedIn, adding:
“Love that this group has grown so significantly over the past six years, not only in numbers but also in our activities. Excited to share space with current Advocates for Collaborative Education members, welcome new members, and especially to support our advocates who will be on the stage at American Society of Clinical Oncology (ASCO) events including:
Megan-Claire J. Chase: ASCO Voices: 5/29, 1-2pm CT in S100a
Sydney Barned M.D.: From Novel Agents to Novel Adverse Events: Getting Comfortable With Toxicity Profiles of Emerging Systemic Anticancer Therapy 5/30, 8am – 9:15amCT
Kelly Shanahan: ‘How to define endpoints that are meaningful to people with cancer: ask us, or to quote the Spice Girls, ‘Yo, I’ll tell you what I want, what I really, really want‘ 5/31, 9:45amCT, Hall D1
JJ Singleton: Survivorship community of practice panel 6/1, 8-9:30amCT
If you’re attending and/or speaking (and forgot to fill out the ‘Who’s going to ASCO and who’s on stage?‘ ACE form) please add it to the form, or send me a note with the details, so we can include you in our meet-up(s) and hype posts!
If you’re a first time ASCO attendee, reach out – the meeting can be a little overwhelming but we are always happy to connect and share tips and tricks.”
Quoting Advocates for Collaborative Education’s post:
“Advocates for Collaborative Education (ACE) was born from a tweet dialogue during ASCO20 between Manju George, Stacey Tinianov, MPH, BCPA, Allison Rosen, MS, and Jill Feldman where, after decades of breaking down silos between patient communities and clinical care and research, a group of advocates from the breast, lung, and colorectal communities realized that we had inadvertenly created silos across cancer types.
While some cancers had well-established research funding and connections, others were struggling in the awareness stage. With limited resources and urgent, unmet needs across the cancer continuum, we felt learning with and from each other was the answer.
During the height of the pandemic, our group met online several times a week to share wild successes, abysmal failures, and to lean on the hive mind of our membership for suggestions and support in our collective advocacy efforts. We experienced with rapid membership growth and, following the success of our first, advocate-led research project into quality-of-life, we incorporated in 2024 as a 501c3 organization to continue and expand our efforts.
Excited that, as we approach our sixth year, some of us will soon again be able to connect in person at the American Society of Clinical Oncology (ASCO) annual meeting in Chicago.
If you’re around and want to learn more about our organization, our programming, and/or our advocate-led research, please get in touch!
Some of our original founding members including Stacey Tinianov, MPH, BCPA, Allison Rosen, MS, Ginny Mason, Jill Feldman, and Kelly Shanahan will be there as will some of our newer members including Megan-Claire J. Chase, Nicole Normandin Rueda, LMSW, Donna Short, Steven Merlin, Jon Treffert, Bruce Dunbar, Stephanie Gayhart, MHI, RN, Jessica Ramos Acosta, JJ Singleton, Dana Deighton, Sydney Barned M.D., Amanda Hollinger, Danna Remen, Aisha McClellan, Michele Young, Joyce Garber, and Julie Clauer.
(And, there may be more, these are just the ones that provided their details!).”
Elevating the Patient Voice in Cancer Advocacy
Other articles featuring Stacey Tinianov and Advocates for Collaborative Education on OncoDaily.