Natalie Bradford, Director of Paediatric Palliative Care Centre of Research Excellence, shared Children’s Cancer CoLab’s post on LinkedIn, adding:
“It was an honour to gather at our nation’s Parliament House in Canberra this morning to amplify one message: surviving childhood cancer is not enough.
We were joined by people with lived experience, clinicians, advocates and ministers, all calling for coordinated research to address the needs of young cancer survivors.
I spoke about the evidence that highlights unmet needs and the research we need to do in Australia.
Young survivors and families have told us survivorship research is an urgent top priority for research yet fewer than 2% of survivorship studies worldwide come from Australia.
Read the top 10 child and adolescent cancer research priorities we identified in our recent study coordinated by Gayani De Silva: Top 10 research gaps in child and adolescent cancer care identified in nationwide study
We need to test models of care in Australian settings that address unmet needs and make sure the CAYA Roadmap includes robust equitable pathways to help young people thrive after cancer.
We invested in research to help children survive cancer. Now we need to invest in research that helps them live well after it.
Thank you to Children’s Cancer CoLab for bringing us together.”
Quoting Children’s Cancer CoLab’s post:
“Today, survivors, families, clinicians and researchers took childhood cancer survivorship to Parliament House in Canberra.
Thank you to Dr Mike Freelander and Dr Anne Webster for hosting, and to Assistant Minister Rebecca White for highlighting the work already underway and the critical opportunities that exist to improve outcome.
Parliamentarians heard from Sheila Patel and her daughter Maya about their familys experience of life after childhood cancer, as well from Professor Natalie Bradford and our CEO Dr Udani Reets about the opportunity research gives us to improve survivors futures.
A special thank you to the survivors and families who so generously shared their experiences with parliamentarians throughout the day.
Learn more about what was shared at the event: Parliament hears why surviving childhood cancer is only the beginning.”
Other articles about childhood cancer on OncoDaily.
