Lung Cancer Europe shared a post on LinkedIn:
“When you have lung cancer, how you feel day to day is important information. Whether you can manage at work, sleep through the night, walk the dog, or be there for the people you love.
These are patient-reported outcomes. What the person tells their care team about their symptoms and daily life. The questionnaires that capture them are called Patient-Reported Outcome Measures, or PROMs.
Cecilia Pompili, thoracic surgeon and associate professor at the University of Hull, put it simply at our conference in Vienna. Clinicians are the experts on the medical evidence. The person is the expert on what counts most to them.
Listening to people is at the heart of our work. As our President Debra Montague puts it, our reports are ‘the patient voice, quantified and heard.’ Yet in our 9th Annual Report: Empowering Voices, only 56% of people with lung cancer felt heard in decisions about their care.
When care teams ask and use these answers, they can spot problems early and make decisions with the person, not just for them. This is the direction lung cancer care needs to go. Sharing information clearly, deciding together, and treating how someone feels as part of their care.”
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