Claire Wakefield, Director of Research at the Division of Quality of Life and Pediatric Palliative Care at Stanford University, shared American Society of Law, Medicine & Ethics’s post on LinkedIn, adding:
“I’m so excited to see this paper published!
As more people seek access to their genomic data, it is so important that researchers have appropriate ethical and practical frameworks to support them.”
Quoting American Society of Law, Medicine & Ethics’s post:
“New open-access on FirstView: ‘Regulatory Guidance for the Return of Raw Genomic Data to Research Participants: A Qualitative Interview Study’ by Jane Nielsen, Claire Wakefield, Rebekah McWhirter, Carolyn Johnston, Margaret Otlowski, Vanessa (Ness) Tyrrell, Mark Cowley, Katherine M. Tucker, Ruth Lyons, Anthony J. Gill.”
Title: Regulatory Guidance for the Return of Raw Genomic Data to Research Participants: A Qualitative Interview Study
Authors: Jane Louise Nielsen, Claire E Wakefield, Rebekah McWhirter, Carolyn Johnston, Carolyn Johnston, Margaret Otlowski, Vanessa Tyrrell, Mark J. Cowley, Katherine M. Tucker, Ruth Lyons, Anthony J Gill
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