Lived Experience Hub: Patient Advocates Research Opportunity
Organizer: United Colors of Cancer (UCC).
What is it? This is a national listening campaign designed to collect the real stories, experiences, and perspectives of BIPOC (Black, Indigenous, and People of Color) cancer patients, survivors, and caregivers across the United States. The initiative aims to fill a critical gap where these lived experiences are often absent from the data driving research and healthcare decisions.
The data collected will directly inform the inaugural State of BIPOC Cancer Report, a first-of-its-kind publication that will benchmark cancer experiences in communities of color. This report will be used to identify systemic barriers, highlight disparities, and recommend evidence-based interventions at local, state, and national levels.
What will participants do? Participants will complete a structured online survey covering their experiences with access to care, treatment barriers, financial hardship, and emotional well-being. Participation is entirely voluntary, and participants may skip any question or stop at any time.
Who is the program designed for? The program centers on the experiences of BIPOC and underserved communities, though all persons whose lives have been impacted by cancer are welcome and encouraged to share their voices.
Who can apply?
- Cancer patients currently in treatment.
- Cancer survivors of all backgrounds.
- Caregivers and family members of cancer patients.
- Adolescent and young adult (AYA) cancer survivors.
- Individuals who have experienced barriers to cancer care.
Geographic eligibility: United States of America
Languages: English, Spanish, Tagalog, Vietnamese, Chinese, Hindi, Russian, French
Format: Online digital survey
Duration: Approximately 10–12 minutes
Cost / Compensation: Participation is free and voluntary. While no direct financial compensation is mentioned, your contribution helps build a benchmark for systemic change in cancer care.
Next application deadline: The campaign aims to reach its first milestone of 1,000 voices by September 24, 2026 (World Cancer Research Day), but the survey will remain open through December 31, 2026
What will you gain?
- Advocacy impact: Your voice helps shape the future of cancer care research, programs, and policy.
- Representation: Your lived experience becomes part of the evidence base used to drive systemic change.
- Privacy protection: All responses are confidential and reported only in aggregate to protect your personal identity.
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