Photo: Alexandra Heumber Perry/Linkedin
May 22, 2023, 14:09
Alexandra Heumber Perry has been appointed as the CEO of ‘Rare Diseases International’
I am pleased to announce my appointment as the CEO of RARE DISEASES INTERNATIONAL starting on June 12.
Over 300 million persons live with a rare disease worldwide, I am honored to be given the responsibility to lead RDI and to represent the voice of the rare diseases community.
RDI is a global network of organizations, individuals, and professionals dedicated to advancing patient-focused initiatives related to rare diseases. RDI is committed to creating a world where no one with a rare disease is left behind, and since its launch in 2015 has been devoted to advocating for those living with rare diseases and advancing rare disease research.
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