Photo: Alexandra Heumber Perry/Linkedin
May 22, 2023, 14:09
Alexandra Heumber Perry has been appointed as the CEO of ‘Rare Diseases International’
I am pleased to announce my appointment as the CEO of RARE DISEASES INTERNATIONAL starting on June 12.
Over 300 million persons live with a rare disease worldwide, I am honored to be given the responsibility to lead RDI and to represent the voice of the rare diseases community.
RDI is a global network of organizations, individuals, and professionals dedicated to advancing patient-focused initiatives related to rare diseases. RDI is committed to creating a world where no one with a rare disease is left behind, and since its launch in 2015 has been devoted to advocating for those living with rare diseases and advancing rare disease research.
-
ESMO 2024 Congress
September 13-17, 2024
-
ASCO Annual Meeting
May 30 - June 4, 2024
-
Yvonne Award 2024
May 31, 2024
-
OncoThon 2024, Online
Feb. 15, 2024
-
Global Summit on War & Cancer 2023, Online
Dec. 14-16, 2023
Dec 22, 2024, 11:49
Dec 22, 2024, 11:42
Dec 22, 2024, 10:51
Dec 22, 2024, 10:44