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May 22, 2023, 14:09
Alexandra Heumber Perry has been appointed as the CEO of ‘Rare Diseases International’
I am pleased to announce my appointment as the CEO of RARE DISEASES INTERNATIONAL starting on June 12.
Over 300 million persons live with a rare disease worldwide, I am honored to be given the responsibility to lead RDI and to represent the voice of the rare diseases community.
RDI is a global network of organizations, individuals, and professionals dedicated to advancing patient-focused initiatives related to rare diseases. RDI is committed to creating a world where no one with a rare disease is left behind, and since its launch in 2015 has been devoted to advocating for those living with rare diseases and advancing rare disease research.
Aug 11, 2024, 12:31