Andrea Suarez: Only 25% of cancer patients in clinical trials are asked about side effects they find intolerable
Andrea Suarez, Community Engagement Advisor at GRYT Health, shared on X:
“Did you know only 25% of cancer patients in clinical trials are asked about side effects they find intolerable? Asking the right questions can significantly boost Clinical Trial enrollment.”
Stacey Tinianov, co-founder of Advocates for Collaborative Education (ACE), shared this post on X, adding:
“Indeed, these were types of things we investigated with our Advocates for Collaborative Education (ACE) survey ‘More Than a Diagnosis’. We asked across the diagnosis/treatment/survivorship landscape (not specifically clinical trials). Also concerning: PROs are rarely published even if questions are asked.”
Stacey Tinianov is a board-certified patient advocate. As a co-founder of Advocates for Collaborative Education (ACE), Tinianov advises companies like Ciitizen and CareLoop, ensuring patient-centricity in their initiatives.
She serves on boards such as Bay Area Young Survivors (BAYS) and Camp Kesem SCU, advocating for cancer survivors’ needs. Tinianov’s influence also reaches policy and research spheres, contributing to organizations like the National Coalition for Cancer Survivorship (NCCS) and UCSF’s Breast Science Advocacy Core (BSAC).
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