Nicholas Hornstein: Study Finds Early-Onset Cholangiocarcinoma Patients Face Longer Diagnostic Delays
Nicholas Hornstein/ LinkedIn

Nicholas Hornstein: Study Finds Early-Onset Cholangiocarcinoma Patients Face Longer Diagnostic Delays

Nicholas Hornstein, Assistant Professor at Northwell Health, shared on LinkedIn:

“There is no such thing as ‘too young for cancer.’ I keep writing this because apparently some people still need to read it.

Our new The Gut Onc Lab paper on early –  onset cholangiocarcinoma is out, and the message is simple:

Early-onset cancers aren’t just a colorectal disease, and these patients are routinely ignored at diagnosis.

Sydney Towle helped early onset cholangiocarcinoma into the public eye via TikTok, but her experience with delayed diagnosis was sadly the norm.

Our data show the problem at scale.

We looked at >116,000 patients with cholangiocarcinoma, including >5,000 diagnosed before 50.

Younger patients had 24% higher odds of waiting >30 days for a diagnosis
Median diagnostic delay was two months
Young women were particularly affected

The problem, as it seems, was getting to the diagnosis.
Early – age cancer is bigger than EACRC

One liner?

Young people get cancer too. When they tell us something is wrong, we should listen.”

Title: Care delivery among patients with early-onset versus average-onset cholangiocarcinoma: a nationwide retrospective analysis

Authors: U.S. Grewal, A. Nottke, B.T. Loeffler, S.J. Concors, N.J. Hornstein, T.J. Brown, A. Lamarca, J.W. Valle

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Nicholas Hornstein: Study Finds Early-Onset Cholangiocarcinoma Patients Face Longer Diagnostic Delays

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