Winette van der Graaf: Netherlands in ESMO Sarcoma Rare Cancers Meeting
Winette van der Graaf,
“Diagnostic trajectories in sarcoma and rare cancer patients-in-general are often complex with delays at different levels due to the unfamiliarity of people, (the later)patients, and doctors with the disease and the heterogeneity in histologies and clinical presentations.
This may lead to late diagnoses and frustration at all levels and reduced Health-related quality of life (HRQOL) of patients. Olga Husson presented at the ESMO Sarcoma Rare Cancers meeting in Lugano results of a study in the Netherlands on diagnostic trajectories of rare cancer patients and Emily Holthuis, PhD student of our team, presents a poster today with interesting results of symptoms reported by patients to their GP prior to their sarcoma diagnosis.
The discussant yesterday highlighted results of our QUEST study in which we compare diagnostic trajectory data between the UK and The Netherlands in Sarcoma (Vicky Soomers). More results will follow the coming time. Grateful to the hard work of our research team AYA SARCOMA, The Netherlands Cancer Institute. Hopefully this work will give us hints for the future in solving part of this difficult to crack multifactorial delay-in-diagnosis issue.”
Source: Winette van der Graaf/LinkedIn