We were invited by the Directorate of Research and Innovation of the European Commission to take stock of progress and discuss upcoming priorities – Youth Cancer Europe
Youth Cancer Europe shared on LinkedIn:
“We were invited by the Directorate of Research and Innovation of the European Commission representatives of both the Cancer Mission Board and Europe’s Beating Cancer Plan, to take stock of progress and discuss upcoming priorities.
YCE’s Katie Rizvi, Šarūnas Narbutas, Carmen Monge-Montero, Erik Sturesson Stewart O’Callaghan, Ania Buchacz, Victor Girbu, Ana-Maria Totovina presented our work and advocated for our research priorities and asked the DG RTD for concentrated focus on adolescents and young adults with cancer AYA, for more focus on diversity and inclusion EDI and quality of life issues such as fertility and access to artificial reproduction therapies.
Further emphasising the need for more data in AYA cancer care, Katie spoke about STRONG AYA, an EU-funded project where YCE leads patient engagement, and FORTEe, running the largest randomised controlled trial amongst children and adolescents with cancer to create high evidence for the use of precision exercise interventions, for exercise therapy in oncology to become evidence-based standard in the EU.
To have evidence based strategies for healthy living, good mental health, nutrition, physical exercise, and healthy environment as cancer prevention (as well as ameliorating and preventing late effects, secondary cancers, and comorbidities), we need more studies aimed at social determinants of cancer, something that YCE is militantly advocating for and was eager to discuss on this consultation.
Together with European Network of Youth Cancer Survivors partners Childhood Cancer International – Europe and Carina Schneider, Mihael Severinac, Hanna and others, we also spoke extensively of the work of the EU-CAYAS-NET EU funded project outcomes.”
Source: /LinkedIn