
Denis Horgan: Working towards joint understanding in Europe of the benefits of linking policy and novel care options.
Denis Horgan, Executive Director, European Alliance for Personalised Medicine, shared on LinkedIn:
“Working towards joint understanding in Europe of the benefits of linking policy and novel care options.
Berlin, 11 October 2023: Further progress has been made this Monday and Tuesday towards building a comprehensive EU platform for cancer and public health genomics, as is revealed through the latest conference of Can.Heal, hosted by Charité in Berlin and organised under the umbrella of CAN.HEAL. The sessions demonstrated that much has been achieved by the consortium and that CAN.HEAL is gaining momentum, writes Denis Horgan, Executive Director, European Alliance for Personalised Medicine.
Leading European figures from medical science, innovative technology developers and EU health policy spent two intensive days plotting the next stages in bringing a new coherence to advanced health care.
The exchanges offered clear evidence of the significance of the choices and decisions that have to be made as Europe struggles to identify the best ways forward to take advantage of new opportunities in healthcare.
In discussions of the European Health Data Space, the EU’s current bid to regulate how personal data may best be used for individual health and for research, the insistence by Dorothee Andres of Germany’s Federal Ministry of Health on the importance of ‘opt in’ in arrangements that ensured individuals would by default preserve the confidentiality of their genetic data was met by a chorus of opposition from elsewhere within the consortium, equally insistent that ‘opt out’ was the only mechanism that could support empowering data for the benefit of patients.
The example was given of Austria’s laws successfully providing organ donation as the default option at the time of death, unless individuals explicitly opt out. By contrast, in Germany, organ donations are lower, because of opt-in requirements that leave many people unaware that they have to explicitly opt in, even when they might have been disposed to donate.
The same impact would be felt from imposing opt-in requirements on European Health Data Space, creating obstacles for translational research and limiting the potential benefits to patients.
The event saw a scene-setting by the project coordinator, Marc Van Den Bulcke of Sciensano, who stressed the groundbreaking nature of the Can.Heal project link as it works towards a European agenda to speed up the delivery of diagnostic and public health genomics services to patients and citizens.
For the full press release, please see this link.”
Source: Denis Horgan/LinkedIn
-
Dec 10, 2023, 16:59 | InsightYüksel Ürün: MFS continues to be a reliable predictor for overall survival
-
Dec 10, 2023, 16:53 | PositiveMatteo Lambertini: December 7, 2023 …a day to remember
-
Dec 10, 2023, 12:45 | BlogSIOP: Worldwide Candle Lighting Day is a celebration of solidarity and memory
-
Dec 10, 2023, 12:20 | BlogTedros Adhanom Ghebreyesus: France plays a critical role in global health
-
Dec 10, 2023, 12:14 | BlogDinesh Pendharkar: More than 200000 women over two years
-
Dec 10, 2023, 05:08 | SocietiesGlobal Summit on War and Cancer: Agenda
-
Dec 10, 2023, 18:12The Cancer Research Interns (CRI) Summer Program is now accepting applications! - Train at NCI
-
Dec 10, 2023, 18:08Apply for the Basic Research in Cancer Health Disparities Program - NCI Center to Reduce Cancer Health Disparities (CRCHD)
-
Dec 10, 2023, 18:01Giselle Sholler: Our research that led to the FDA-Oncologic Drugs Advisory Committee 70% approval for moving Difluoromethylornithine forward
-
Dec 10, 2023, 16:59Yüksel Ürün: MFS continues to be a reliable predictor for overall survival
-
Dec 10, 2023, 12:03Eleonora Teplinsky: The POSITIVE Trial SABCS23 updates are so important to help with oncofertility counseling
-
Dec 10, 2023, 16:53Matteo Lambertini: December 7, 2023 …a day to remember
-
Dec 8, 2023, 16:33Big thank you to Dr. Rucha Kiran Patil for sharing their experiences and learnings on writing abstracts and poster presentations - Novo Nordisk Haemophilia Foundation
-
Dec 6, 2023, 14:57Tracy Gosselin: Jennifer Petruno Receives DAISY Award for Extraordinary Nurses
-
Dec 3, 2023, 16:34Tedros Adhanom Ghebreyesus: Grateful to Namibia’s Prime Minister Saara Kuugongelwa-Amadhila for her commitment to health
-
Dec 2, 2023, 18:08100 Influential Celebrities in Oncology: The 2023 Edition – Part 5
-
Dec 10, 2023, 05:08Global Summit on War and Cancer: Agenda
-
Dec 4, 2023, 16:26SIOP 2023 by Numbers! - International Society of Paediatric Oncology
-
Dec 2, 2023, 16:43In our recent survey, nearly 1,700 ASCO members shared feedback on the ABIM MOC requirements - ASCO
-
Nov 28, 2023, 17:34The International Association of Cancer Registries annual conference - IARC
-
Nov 26, 2023, 18:05Submit your abstract by 13 February for ESMO-Breast-24 - ESMO
-
Dec 10, 2023, 17:39Dr. Salami is the winner of the American Urological Association’s prestigious Gold Cystoscope Award - YUO
-
Dec 10, 2023, 17:26Mark Awad was honored by GO2 for Lung Cancer at the 18th Annual Simply the Best Gala - Dana-Farber Cancer Institute
-
Dec 9, 2023, 17:00Wafik S. El-Deiry: Honored to share the news of my election as the Chair of the WIN Consortium in Personalized Cancer Medicine
-
Dec 8, 2023, 17:54Dana-Farber News congratulates Sara Tolaney on receiving the Susan G. Komen 2023 Rising Star Researcher Award
-
Dec 8, 2023, 17:35Timothy M. Pawlik: Excited to announce Samilia Obeng-Gyasi as THE inaugural Endowed Surgical Professor in Health Equity