MEPs Against Cancer: The MEPs Against Cancer webinar on the role of EU Health Data Space in Cancer Control is about to start.
Quoting MEPs Against Cancer on X/Twitter:
“The MEPs Against Cancer webinar on the role of EU Health Data Space in Cancer Control is about to start.
Join us here.
‘We need a properly balanced step-out legal environment that should consider patients’ rights and research interests, stressing the overall benefits that the use of patient data for research can bring to all cancer patients’ – Dr. Francisco Rodríguez Lozano from Cancer Patients Europe.
‘We need to build the EHDS as a tool for cancer patients, to help them get a quicker diagnosis and access the adequate health care and treatments, even across the border if necessary’ – MEP Tilly Metz highlights the potential of the EU Health Data Space to benefit cancer patients.
Dr. Daniel Morales from EU Medicines Agency highlights the role of EU Health Data Space in improving medical data access: ‘Regulators need access to health data that is rapid, wide, and deep to help patients with cancer gain faster access to effective cancer treatments being developed.’
Sylvia Maurer from The Consumer Voice highlights the need to protect patients’ privacy: ‘EU Health Data Space is an opportunity to create better care and treatments for people. However, the EHDS must come with an ability for people to stay in control of their data given how sensitive it is.’
Nasreen Anjum from KWF Kankerbestrijding on EHDS and healthcare development: ‘The EHDS will provide a regulatory foundation needed to facilitate data accessibility of (real-world) data for research, catalysing cancer research and bringing us a step closer to a learning health system.’
Fulvia Raffaelli on the EHDS potential to improve medical research: ‘The EU Health Data Space will be a big boost for cancer research by making available large amounts of data.'”
Source: MEPs Against Cancer/Twitter
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