Katie Coleman: Things not to say to a patient advocate

Katie Coleman, Founder of Chromophobe and Oncocytic Tumor Alliance (COA), shared a post on X/Twitter:

“Things not to say to a patient advocate.

‘You shouldn’t share your story. Your story doesn’t help anyone’.

Patients with rare cancers can provide insights and perspective for both rare and common cancers. Words matter. Don’t alienate us.”

Source: Katie Coleman/X