EORTC joined 31 other European organisations

Proud to announce that EORTC joined 31 other European patient organisations, medical associations, research institutes and healthcare companies to share their common views on specific recommendations for a potential opt-out mechanism in the EHDS.

The group supports the approach taken in the European Commission’s original legislative proposal from May 2022 as it strikes a sensible balance between protecting personal data while enabling the use of data for research and innovation to create tangible benefits for patients and citizens.

The stakeholders raised concerns about the real risk that data bias will form part of the EHDS from its inception and thus undermine its principal value for secondary use research purposes if an opt-out or opt-in mechanism is approved and call for an impact assessment that will inform the implementation of this policy option.

Source: EORTC/Linkedin