Katherine Stueland: Rapid Whole Genome Sequencing was passed into law in Connecticut, where GeneDx is headquartered
Katherine Stueland, President and CEO at GeneDx, shared on LinkedIn:
“On July 1, Rapid Whole Genome Sequencing (rWGS) was passed into law in Connecticut, where GeneDx is headquartered. I’m so proud to share that one of GeneDx’s own, Benjamin King, was essential in helping pass this law with his testimony in the legislative hearing – Ben’s daughter Olivia passed away from a rare disease and received rWGS from GeneDx. Following her passing, Ben joined our sales team in efforts to support his life work to help expand access to WGS for children.
Yesterday Ben spoke at a UConn Health Press Conference to celebrate the law. I’m so grateful to Ben for sharing his story to showcase the impact of rWGS firsthand to increase awareness for the benefits and availability of rWGS for Connecticut providers and families.
We are excited to see biomarker legislation continue to pass throughout the country and know the direct impact these laws will have on patients and families. I am also thrilled to see elected officials like Rep. Jillian Gilchrest encourage private insurers to follow Medicaid’s precedent and cover this critical testing for newborns.”